Faith's Mom's Blog

Rob was so excited to take Faith fishing last week. Daddy taking daughter fishing for the first time was the ultimate bonding experience. Faith had been a little sick last week and stayed home from school for a couple of days but thankfully she felt better and went to school on Friday and made it to her field trip. It's a good thing because Rob would have been extremely disappointed if they had missed it! Faith ended up catching a total of five fish! Two of them were rainbow trout which they threw back right away and the other three were perch which the kids got to hold, touch and feel before throwing them back. She had so much fun! And so did her dad!   Thanks Tina Ding for taking these great pics!

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First of all, I'd like to thank the 2012  Faith's Fantastic 12 GABR Team: Becky Eske, Beth Kaylor, Cassie Brazell, Gwen Barone, Julie Jensen, Katie Huizinga, Kent Kaylor, Krysta Wrath, Rob Bousfield, Sarah Hoffman, Tanya Steckler and Brooke Schaff.   Thanks for riding and for fundraising! CLICK HERE TO SEE FAITH'S FANTASTIC 12 Also, a huge Thank You to all of you who donated to me for Faith's Fantastic 12:  Mike and Deone Lawlar (Grandpa and Grandma), Cousin Vicki Hammond, Friends Fran Dwelle, The Bitz Family, Tom & Diane Hahn, Michelle Stahl, The Sago Family, Peg Walth, Sandy Bauer, My dear college friends Janee Anez, Resa Hartl, Kristi Holzer and family, Faith's cousins, Sydnee and Kenzie Lawlar, Faith's auntie of sorts, Nicole Samuelson and family, Coworker Blaine Kincaid, Barrett Pharmacy & Variety of Watford City, Centennial Elementary School's staff and students and oh yeah, that mystery man from Marathon Oil! ALSO thanks to my brother Todd

As Rob was putting on his tie, he asked, "how did I get roped into this again?" He was referring to his and Faith's first ever Daddy-Daughter dance. A friend of ours who also has a little girl in a wheelchair has gone for the last four years and has asked Rob in the past if he was going or not. I was so excited when Rob decided to buy tickets for this year's dance called the Butterfly Ball, which is a fundraiser for a local music school. When we got to the venue, we were a little surprised at how packed it was. Not only were there 299 other dads with their little girls, but there were also moms, grandmas, grandpas, aunts, uncles, cousins, friends, neighbors - all of them taking photos of the dressed up dads and daughters. What a handsome husband and beautiful daughter! Rob and Faith with our friends, Tracy and Paige Most of the dads were sporting suits and ties and most of the 5-12 year-old girls were dressed in mini prom dresses. I'm not sure where yo

Faith loves surprising people. There's only one problem - she's not very good at it. She starts giggling and laughing and sort of gives the surprise away. Sometimes when Rob is working in the office, we like to surprise him with cookies. Well, we try to surprise him but he hears us coming down the hallway long before we even get to the door. She yells, "Surprise!" anyway. Because Faith likes surprises, she was very excited for her uncle Todd's surprise birthday party. Unfortunately it didn't work out that she was there when Todd walked in the room and we all got to yell Surprise! She had been a little nervous beforehand so she and Rob ended up coming a little later. After she warmed up to the new environment, and all the unfamiliar faces, she couldn't wait for us to put the candles on the cake and sing Happy Birthday. Due to Todd's rigorous rig schedule, we had his party a little early Todd, Barbara and family The cake was a huge hit! Fa

Today we celebrated Easter, or as I like to call it, Resurrection Sunday. We started our day by attending church with Faith's auntie Barbara. Faith had never been to this church before - I had gone once before with Barbara. Though the music was a little loud, Faith did great. At one point, Rob was concerned about how she was doing so he took her out into the lobby but she wanted to come back in and sit by Barbara, who held her hand the whole time. The whole service ended up being about two hours long but Faith very patient through the sermon and at one point was repeating the words the pastor was saying. The pastor gave a great message talking about  the Resurrection of Christ being the foundation of Christianity - without Jesus rising from the dead, Christianity would be just like any other religion - completely man-made.We ended the service singing the great song "Because He Lives." After church, we had dinner with our two terrific friends, Bob and Lola. There were

Guest Post by Russel Kelfer You are who you are for a reason. You're part of an intricate plan. You're a precious and perfect unique design, Called "God's special woman or man." You look like you look for a reason.  Our God made no mistake. He knit you together within the womb, You're just what He wanted to make! The parents you had were the ones He chose And no matter how you may feel,  They were custom-designed with God's plan in mind, And they bear the Master's seal. No, that trauma you faced was not easy; And God wept that it hurt you so. But it was allowed to shape your heart So that into His likeness you'd grow.  You are who you are for a reason. You've been formed by the Master's rod.  You are who you are, Beloved, Because there is a GOD.

I guess after Saturday's wheelchair soccer game in which Faith took part, I could easily see myself as a wheelchair soccer mom. She had such a blast and with the help of a soccer player from the University of Mary, she made some great plays and even scored some goals! And the faster her helper pushed her chair around up and down the gym, the bigger she smiled. Her dad watched from the sidelines praying her driver wasn't going to crash her into the wall. Faith goes flying across the gym to help her teammates on the other side check out the gigantic "soccer ball" are soccer balls supposed to go up in the air like that? While it was called wheelchair soccer, it was sort of a toss up between soccer and beach volleyball. The kids couldn't use their feet but instead used their hands and upper body to get the ball up and down the "soccer field." And the ball wasn't a soccer ball, instead it was a huge blow-up beach ball. The kids were divided a

It seems we have been having a bit of our own March madness with so much happening this past week. Last week Faith and I were both struggling with colds and sore throats which caused me to miss work and her to miss school. I was hoping she would be up to trying wheelchair soccer this past weekend over at her school but she just wasn't up to it. As for myself, I wasn't sure if I would be up going to a Christian concert in Dickinson, but I went anyway. Me and my friend Sandy had front row seats and I even got autographs from the artistis themselves - Big Daddy Weave, MikesChair and Kerrie Roberts! I also saw another friend at the concert who recently moved to Killdeer - it was so cool to see her there! While I went road-tripping to Dickinson, Faith spent the whole evening with her dad. I didn't get home until 1:00 a.m. and by 10:30 a.m. the next day, Faith really wanted her mom. I was sleeping in the bedroom with the door closed and all the sudden I heard Faith knocking

This past week, Faith did something for the first time ever at school - she ate lunch. She tried everything on her tray, which included a turkey sandwich, glazed carrots (which she ate the most of), strawberries and a few bites of a breadstick. Because Faith still needs help eating solids, her occupational therapist had Faith and a few other girls eat lunch together in a separate room. Faith has made the comment when we feed her that "that's for babies" meaning she knows that this is how babies eat - being spoon-fed by someone else. Since we know she is sensitive to this, we decided not to have her join her classroom at lunch for the time-being. But the fact that she actually got to have her lunch replace one of her tube feedings at school was very exciting. The next day she got to eat one of her favorite foods - mashed potatoes and gravy. Each day the kids at school get a choice between a chef salad, ham or turkey sandwich and a hot meal. Each of them comes with diff

It's Saturday morning and after a busy, somewhat stressful work week, I can finally take a moment to enjoy a nice cup of coffee while doing some writing. Sitting here, I am reflecting on the wonderful news we received on Wednesday. Faith's left hip has not pulled out any further from its socket! On Tuesday, Rob took Faith to get her x-rays and then on Wednesday he took her to see the physiotherapist. Upon reviewing Faith's x-rays of her hips, the doctor could not quite believe what he was seeing. The hip looked like it was in the same position as it was five months ago. He was in such disbelief that he sent Rob and Faith back downstairs for another round of x-rays. Faith had to stay on the table in case the doctor wanted more shots taken. She laid there as patiently as she could for about 30 minutes before the doctor finally called them back upstairs. The doctor may have been befuddled but we know that God is working in Faith's body and we give Him all the praise!

It seems that the month of February always goes by so quickly. Maybe it is because January is usually the coldest month of the year and the month just crawls; then when February finally comes, spring doesn't seem so far away. This year, with the milder weather, January wasn't so bad and February is going by even faster than usual. Another factor to a fast-flying February, at least for our family, is that both mine and Rob's birthdays are in February and it is also the month Faith gets to celebrate one of her favorite holidays - Valentines Day. Another fun time for Faith this month was having her 2nd grade program at school. She had so much fun singing along to all the songs and jingling her bell (all the kids got to take turns playing an instrument and hers was the bell) that she wanted to have another program! It was so good to see her truly relaxed and not even having a tough time with startling when people clapped. And although she herself didn't have any lines, sh

What is curling you might ask? The only thing I really knew about curling was that in the Olympics, it was the sport where they use a broom to furiously brush the ice in order to make that round thing go in a certain direction. Then one day Faith brought a flier home from school that her physical therapist sent along announcing wheelchair curling at the Capital Curling Club (I had no idea Bismarck had their own curling club). Faith on Ice! Honestly, I wasn't too sure about it but Faith seemed like she really wanted to try it. She was mostly excited that she would get to go on the ice (must be the Canadian in her!) I, however, was not excited to get on the ice and was glad there were going to be volunteers to help Faith. I'm not sure of all the terms (although my sister-in-law tried to explain it to me the night before we went) but basically one volunteer helped Faith hold a stick thing which they clamped on to a "rock" and then pushed her chair to help her mov

What About the Boy? is written by Stephen Gallup, the father who made a pledge to his disabled son to help him find wellness no matter what it took. Joseph's parents were convinced that something was wrong him. He spent much of his time crying and while lying on the floor he would shake his head from side to side. Doctors and specialists told them that Joseph had a brain injury but that nothing could be done for him.  Believing that it was Joseph's birthright to be well, Joseph's parents took matters into their own hands, rising to the challenge of enabling Joseph to live a life of wholeness. For my complete review of What About the Boy click here . Read Stephen Gallup's guest post on my blog, Who Needs Sympathy?

I am so very proud of both Rob and Faith. I only wish I could have been there with them. Today was a new experience as Faith's medical providers used conscious sedation while administering her botox shots. I was pretty bummed that I couldn't be there. January marks our busiest month at work so taking time off is limited. I already have to take time off on Monday for an appointment. So there I was this morning at work wanting to be with Faith and praying that all would go well. Rob and Faith had to be at the hospital at 8:30. Faith's pediatrician was there, along with a few other of Faith's favorite medical providers. She was especially happy to see PBS playing on the television. Seeing something familiar helped to keep her calm. Rob and I have struggled in the past wondering if conscious sedation was the right thing to do for Faith. It just didn't seem like giving her sedation drugs every time she got botox was very good for her. In the past during her botox i

Last month, we had a sad surprise - that Brittnee, a respite care worker who has been with us for a year and a half, was leaving. Once again, it was time to say goodbye to someone who had become like a part of the family. It's hard when these respite care girls leave, although it is completely understandable. More often than not, they are college-aged and in serious relationships which lead to engagement then marriage. There have been three wonderful girls we have gotten the privilege of knowing through respite care services. And I am continually impressed with their maturity, professionalism and most of all, their great care-taking skills with Faith. While it is hard for us to see them go, it is great that there is e-mail, Facebook and even Skype so we can keep in touch. With all of today's technology it makes the goodbye seem not so final. So to Kimberly, Lindsey and Brittnee - three amazing young ladies who we are blessed to know through respite care - we wish you the be