Showing posts with label family. Show all posts
Showing posts with label family. Show all posts

Saturday, December 30, 2023

A Blessed Christmas Season

Some people start their Christmas season the day after Thanksgiving. Not us! We actually wait until about the second week of December, when we go to the Nutcracker, put on by Northern Plains Dance. (Plus, this year, both of us were still recovering from covid in November!) Every year, Faith loves to see her friends perform onstage and visit with them afterward. We have been going to this performance since 2017, and it never ceases to amaze us! It's been so fun to watch the growth of her ballet friends as they take on more challenging parts each year. 

Enjoying the Nutcracker for the 6th year in a row! 

One new thing that I was able to do this year was go to the Lorie Line Christmas Concert. She has been coming to Bismarck for 30 years and I have always wanted to go, but it has never worked out. This year I was going to try to go with my parents, but then decided not to, as by the time I was going to get tickets, it looked nearly sold out. But then a friend of mine asked if I could help transport her grandma (who uses a wheelchair) in our van to the concert. In exchange for helping, she bought me a ticket to the concert! 

I was just expecting to sit there and listen to Lorie Line play the piano, but it was so much more! She and her husband both interacted with the audience quite a bit and at one point, she even took requests. As people shouted out their favorite songs, she wrote them down and then came up with a medley that included several of the songs! The featured vocalist (Jimmy Finch) was a professional opera singer. He even sang my favorite Christmas carol, "O Holy Night". I just might have to make this event a tradition as well! 

Lorie Line Christmas concert - such a wonderful experience! 

On Saturday, the 23rd, Faith's dad came for a visit. She had a nice time hanging out with him and got to open a few gifts. On Christmas Eve, Faith and I went to church in the morning and then the candlelight service in the evening. My sisters met us there, which I was very surprised and happy about! It was a nice service and afterward, Faith and I drove around and looked at Christmas lights. 


Opening some gifts. 

At church for the Christmas Eve service. Photo credit: Tesa Graff 
Checking out some of the Christmas lights! 

The next day, Faith did a video chat with her Auntie Joh in Canada and got to see her two kitties. Finally, it was time for the big event at Grandma and Grandpa's. There was lots of food, fun, and laughter. 

Along with all the people, there was also a dog named Josie (who came with her family from Nebraska) and the Grinch. My brother and his family from South Dakota had also traveled to Bismarck. After a lively gift exchange game, Faith was tuckered out, so we ventured home. 

Gift exchange game. 
Faith's aunties, Tesa and Dawn helping her during the gift exchange game. 
Faith with Grandma, Grandpa, her cousins, and Josie the dog. 

No one will ever know what it took to get that Christmas tree placed there for family photos! 

Dawn and Faith taking a break from all the chaos and then the Grinch shows up. 

Another thing we have been blessed with this Christmas season is the nice weather. It hasn't been near as cold or snowy like last year. In fact, we have hardly gotten any snow at all and the temps in December have been well above freezing. That all changed overnight when half of the state got hit with a major ice storm! We began getting freezing rain overnight and by the time Tuesday morning rolled around, the streets and sidewalks had become a skating rink. Needless to say, Faith did not make it to therapy or her day program! 

That evening, I received a text from my mom asking for prayer for my brother-in-law who had slipped on the ice at their place and cracked his head open. I started praying right away. Thankfully, despite the ice-covered streets, my brother and his wife were able to get him to the ER in record time (good thing they have a brand-new truck with 4WD). My brother-in-law ended up needing stitches and got a concussion, but we are all so thankful that it wasn't worse. 

Look how shiny the ice made our street! 

The next day, the sun came out in full force and the temperatures reached above freezing, which helped to begin the thawing process. By the time I took Faith to her day program, the no travel advisory had been lifted and things had improved immensely. Another thing to be thankful for was that our power didn't go out, which happened to many people in the southeast part of the state. 

On Friday after taking Faith to her day program, I met my sister, her husband, and one of their sons, along with my parents, for lunch at the Pizza Ranch. That evening, my sister and her boys came over for one final visit, during which we played a fun game of, "Do You Really Know Your Family?" Faith had a blast hanging out with her cousins. 

Faith with her auntie and cousins. 

While it's fun to partake in so many events, do the decorating, eat the goodies, exchange gifts, and be with family, let us not forget the true reason for the season. God came to us in such a humble way, through a baby named Jesus born in a stable, and then died on a cross 33 years later so that our sins could be forgiven. 

Not only that, but those who believe in Him are sealed by the Holy Spirit, have full assurance of salvation, and will live with Him for eternity, which is much more than we could ever deserve! This is why we celebrate Christmas - He truly is the Reason for the Season! 


Merry Christmas and Happy New Year from our family to yours! (Photo credit: Amber Lawlar) 




Sunday, October 29, 2023

No Longer a Teenager

Last week on the 25th, Faith celebrated her 20th birthday, which means she is no longer a teenager! That morning as we drove to her day program, she asked, "Mom how did I get to be 20 so fast?" In some ways, the time has crawled by, but in other ways, it has gone so incredibly fast. 

Faith turns 20! 
When it came to planning something for her birthday, she told me she didn't want a party. I knew though, that as soon as I didn't plan one, she would change her mind. And that's exactly what happened! A few days before her birthday she was asking me who is coming to her party. I was like, "What party?" 

I had decided to just have a small gathering at our apartment. I'm glad I didn't opt for a bigger one at a larger venue, mainly because of the weather. Up until last Wednesday, we had been having the most beautiful fall ever. The colorful leaves were still on the trees and the grass was still green. We had gone to the pumpkin patch on October 19th and it was 70 degrees!

Having fun at the pumpkin patch the week before! 

Faith makes a new friend.

Her dad came to visit her on the 21st and he had remarked what a beautiful drive it had been. But on Wednesday, fall had come to a sudden halt. The temperature dropped into the 40s and it began to rain. The next day, that rain turned to snow. We had squeaked in her birthday party just in time! 

Along with the party, she celebrated by taking her birthday balloons with her to her day program. Due to some of the dietary restrictions of some of her peers, she couldn't take cupcakes. Instead, she handed out glo-stick bracelets to some of her friends. She saved the cupcakes for her friends at therapy the next day. Some of her friends sent birthday greetings in the form of video messages and voicemails, which she loved! She also had a lovely visit over the phone from her grandparents in Canada.

Ready to party! 
Birthday cake! 

Thankful for the helpers! 

Fun with family! 

I'm so glad she had such a great day! 

She had a great time at her party, eating cake, singing songs, and having lots of laughs. One of my favorite parts was just sitting back and relaxing while one guest read her birthday cards, another helped her open presents, and another folded all the tissue paper and neatly put her presents in a pile. Faith had also designated a cake cutter, so I didn't have to do that either! 

I continue to be so grateful for those who blessed her with wonderful gifts like clothes, money, wall hangings, flowers, games, a squishmallow, and other fun things. I'm so glad her 20th birthday was such a success, not to mention safe from the winter weather! 

Getting ready for bed after a fun but exhausting day! 
We ended up getting 8.5 inches of snow and sadly it will stick around as it's supposed to stay cold for a while. I swear we just had winter! 


Tuesday, August 1, 2023

A Wonderful Weekend Getaway

This past weekend, Faith and I both got to experience the Medora Musical together - for the first time ever! We went with my dad and sister. The singing and dancing definitely met our expectations. After the National Anthem, some of the first songs they sang included, "Let's Hear it for the Boy" and "Dancing on the Ceiling." Both songs were a great and energetic way to start the show. 

Faith was super excited, nearly dancing out of her chair! One reason she could hardly contain her excitement was that a few of the performers (Adam and Taylor) go to our church! The storytelling in between the musical numbers described how the little "cow town" of Medora came to be, as well as the influence that Theodore Roosevelt had in North Dakota. 

View from our seats!

Close up of the performers. 

Auntie Dawn and Grandpa

During the song, "Paint Your Dreams Across the Sky" by Dolly Parton, the cast invited the children to join them onstage. I wasn't expecting one of the cast members to come up and stand by Faith to sing. It was super sweet, but unfortunately, I didn't get a picture. They also sang "His Eye Is on the Sparrow," along with a medley of gospel songs. 

There were country songs and funny songs, too, that got the crowd laughing and clapping along. One that I remember was "40 Cups of Coffee." The entertainment also included a trick roping cowboy and another one yodeling.  

We were thoroughly enjoying the show when I noticed a shift in the weather. It had been bright and sunny upon arrival, but it had changed to cloudy and windy. Just as they were about to get into the Paul Bunyan Lumberjack Show, one of the ushers came over to us and said they were going to call the show in five minutes if we wanted to get ahead of the crowd to the elevators. I thought it was very kind of him to give us a heads up, but I was also very disappointed. 

Sadly, we didn't get to see much of the lumberjack show.

When we got up to the parking lot, my sister Dawn pushed Faith as fast as she could to the van and just as they got there, it began to rain. Just after the four of us piled inside the van, it began to downpour. 

Since we were just sitting there, I got a feeding going for Faith. After the traffic cleared, we sadly made our way to Dickinson. All was not lost, though, as there were some gorgeous rainbows in the sky. I have never seen so many of them in such a short time span! 

Bad weather heading straight for us.

The rain was coming down hard!

Videos by Michael Lawlar

Beautiful double rainbow heading from Medora to Dickinson (photo by Dawn Lawlar)

After getting to Dickinson, we found a place to eat. It was called "Sanford's" and when we pulled into the parking lot, Dawn and I realized it was the same restaurant we had eaten at when we had traveled to Watford City about 3 years ago. 

After supper, we made our way back to the hotel and started Faith's evening routine. It had been quite a day. I was so proud of Faith for how she was handling the traveling and the disappointment with the musical ending early. 

Waiting patiently for her chocolate milkshake!

Being udderly silly!
The next day after checking out, we set out for our next adventure: a visit to the Dickinson Museum Center where they had the Badlands Dinosaur Museum. Faith loves dinosaurs and she couldn't wait to get a new shirt for T-Rex Thursday at her day program. It was fun to look at the bones and try to imagine what it was like when dinosaurs roamed the earth. There were also numerous displays of minerals from all over the world, some of which were fluorescent. 

We also explored the Joachim Regional History Museum and Dad even asked if they could open up the Pioneer Machinery Hall, which they sometimes don't do on Sundays depending on how busy it is. Faith was a little bored with some of the history stuff, so she and Dawn ventured to the gift shop where she helped her auntie pick out stuffed dinosaur toys for her grandkids. After all that, we hit up the A&W/KFC and made our way back to Bismarck. 

Dinosaurs and fossils galore!

Faith didn't look too scared!

Faith checking out the cool fluorescent fossils. 

Inside the machinery hall. I told Faith this is what Laura from Little House travelled in. 

Grandpa was super impressed with this old tractor. 

Getting Faith to the Medora Musical was something I have been wanting to do for a long time and with the improved accessibility at the venue, along with help from my sister, we were able to make it happen! I was also very thankful that Faith's grandpa could accompany us. I was so happy to be driving to western North Dakota, as that will always be home to me. 

The end of July was a great time to head west as golden round bales dotted the landscape and the corn, sunflower, and wheat crops were flourishing. The Badlands looked so beautiful, and we even passed by a large herd of bison. It truly was a wonderful weekend getaway! 

The beauty of the Badlands 


Thursday, July 6, 2023

Faith's Fun-Filled 4th

Faith and I had the best 4th of July ever! We started the day bright and early to go to the parade in Mandan. We haven't been there for many years, so I was surprised that she wanted to go. I think maybe it was because she heard everyone at her day program talking about it and making their own plans. 

Faith's grandpa went along with us, as well as her auntie Dawn (my youngest sister). Thanks to Dawn's connections with people who live in Mandan, we were able to park the van at her friend's house and then he drove us down to Main Street. Then, thanks to another friend of hers, we were able to enjoy the parade underneath a canopy right in the front row. I could not be more grateful to her friends for making it such so convenient for us!

One reason I was glad not to go to the parade in the past, was all the planning, parking, and walking it takes, not to mention sitting in the sun for almost 3 hours! Someone might wonder why it takes all that just to go to a parade. Mandan has been hosting this parade for 144 years and between 20,000 and 25,000 people come to it. Because of the crowds, parking is a major issue, and gets a little trickier for accessible vehicles because you can't just put the ramp down anywhere! But thankfully, Dawn had it all planned out and everything went very smoothly. In the end, Faith had a great time, and of course she and Grandpa made friends with those sitting around us. 

After waiting for over an hour, the parade finally gets to us on Main Street! 


One of my favorite parts was seeing all the horses!

It was a fun time with Grandpa and Auntie Dawn! 

After getting home, Faith needed a feeding and a bit of rest before going to our next event, a barbecue at Grandma and Grandpa's. There were hot dogs, burgers, chips, pasta salads, and of course plenty of desserts! My niece and her family were there as well and had fun lighting off little fireworks. Not even the rain could deter them. 

Enjoying the cooler weather on the front porch at Grandma and Grandpa's. 

Weatherwise, it was an unusual 4th of July because it was so cool outside. I was thankful for this, as a couple of years ago it was 107 degrees in July. However, it was also a little too cool, especially for sitting outside on the Capital grounds to watch a concert and fireworks. 

In the past, I wheeled Faith out to the sidewalk where we could watch the fireworks from a distance. However, in our new place, it wasn't really possible to do that. So, I asked if she wanted to just go to the capital instead. Not only was there a fireworks display, but there was also a free concert put on by the Bismarck-Mandan Symphony Orchestra (BMSO). This was the main reason Faith was so excited to go, because one of our friends from church was playing in the symphony. 

After going back home for her final feeding of the day, we got ready to go to the fireworks event. I opened the closet and debated what to bring along. I grabbed a couple of sweatshirts and fuzzy blankets. I would soon find out I wished I had grabbed our winter gear instead! Not only was it barely 60 degrees, but the wind was blowing a bit, too. Plus, the clouds were hiding the sun. But at least there were no mosquitoes! 

My sister came along with us again and we were glad to find an accessible parking spot fairly quickly. After running into some old friends of ours and finding a place to park Faith's chair and our lawn chairs, we hunkered down to enjoy the concert. Everyone around us was bundled up (except for some of the kids, who the cold didn't seem to bother at all!) Faith didn't seem bothered by it either, but she did have the warmest fuzzy blanket! 

Getting ready for the concert to start! 

The Bismarck-Mandan Symphony Orchestra gets ready to perform.

The sun peaked out for just a little bit!

Despite being chilly, it was a really nice event. The symphony was fantastic and together with a few singers, performed some really cool music, such as Purple Rain and Let's Go Crazy by Prince, a few songs by the Eagles, and Islands in the Stream. There were also a few songs that celebrated North Dakota and many patriotic numbers as well. 

The symphony also played a United States Armed Forces medley and had members of the audience stand when they heard their official service song. I thought that was really neat!  When the military members stood during their song, the rest of the audience applauded them. A few of my favorite songs the symphony played were Battle Hymn of the Republic and God Bless the USA

Finally, it got dark (which doesn't happen until about 10:15 in North Dakota during the summer) and they were able to do the fireworks display. It really was a wonderful event and I look forward to going again next year. Hopefully it will be a bit warmer, though! 

Faith was so happy to see the fireworks! 



All in all, it was a wonderful day to celebrate our country's birthday and remember how blessed we are to enjoy the freedoms that we have! 

Monday, August 1, 2022

3 Big Events All In One Week

Here it is the first day of August and one thing is certain: last month was a busy one! Both Faith and I had some important appointments, plus she had her 6-month evaluation for her day program. It's so hard to believe she's been there for half a year already.

Faith at the Sock Hop at her day program
 

The Day Program is one of her favorite things in the world. She loves going and I'm so glad they love having her there. She is a bright light and full of joy wherever she goes. She is also full of encouragement, which I believe is one of her God-given gifts! But besides going to her day program and therapy, Faith had some other major events - all of which take place the last week in July!

Big Event #1: Our First Baseball Game

The first was attending our first-ever Bismarck Larks baseball game. We didn't just attend, though. We both got to go on the field where she placed the ball on the mound and then announced into a microphone, "Play Ball!" This opportunity came about through Kids in Motion, where Faith goes to therapy twice a week. They had asked if she wanted to take part and she exclaimed, "Yes!" 

My contact person from the Larks told me I would get 4 free tickets in accessible seating. It ended up working out so that my sister, her husband, and one of their sons (who plays baseball) were going to be coming up from Nebraska so they were able go to the game with us! 

At the ballpark, while making our way to the entrance, I was totally surprised when a Larks fan saw Faith and took off his jersey and gave it to her! I couldn't believe his kindness and generosity! We then found our contact guy, found my sister and her family, and then went onto the field near third base by the team's dugout to get our directions on what to do. 

Faith had to go to the pitcher's mound, deliver the baseball, and then go back to our spot by the dugout while they sang the National Anthem and made team introductions. After that, I had to wheel her back to field. The guy with the microphone explained to her that he was going to count down from 3 and then she was could yell, "Play Ball." She was so excited though, that she didn't wait until the countdown was done! 

Hanging out with the Graffs on the field before the game.

Faith got to put the ball on the mound!

Afterwards, we made our way to our seats. We had never gone to a baseball game together and I honestly didn't think she'd make it through all 9 innings. She totally surprised me by maintaining her enthusiasm until the very end! It helped that the Larks were winning and there was a lot of music, dancing, and cheering. Plus, the Larks mascots came by quite often, giving her a high-five every time.

I have to say I was totally impressed with every aspect of the Larks organization. Not only was the accessible seating in a good spot, but everything was completely accessible. Even the little gift shop had a temporary ramp placed over the door's threshold so I could roll Faith in there. Besides Faith, there was another little girl with special needs who, with the help of her sister, got to make her way around the entire baseball diamond in between innings. I really liked their show of support for the special needs community. 

Having a ball!

Faith loved Merrifeather Lewis!

Faith and Preston in their "22" Larks Jerseys.

Preston getting an autograph.

After the game the entire team stuck around to give autographs. Faith got one autograph while her cousin went all out and had every player autograph the jersey he had tried so hard to win! It was a really fun evening and the weather was perfect at just 78 degrees. Right after the game, we headed home and got ready for the next day.

Big Event #2: Botox Injections at the Hospital 

Despite needing to be at the hospital at 8:30 a.m., Faith wasn't actually in the operating room until 10:30. One part of the delay was getting the right size sling for the lift to transfer her from her chair to the hospital bed. As they were getting her into the sling and then getting her hospital gown on, it was all I could do to jump in and do it for them. I had to remind myself that this was their job! 

Faith has had Botox in the past but it didn't seem to last very long for her. Also, at that time, she wasn't put under for it, so it ended up being a very traumatic experience every time she did it. I just wasn't sure it was worth putting her through all that trauma and then not gaining very much from it. 

Her physical therapist, however, strongly recommended that we try it again to see how she responded. It was her hope that she would be able to tolerate her foot orthotics for longer periods of time. Plus, it would allow them to work more with her legs in order to increase strength and range of motion. I was hoping it would also help her be more comfortable in general.

Faith at Kids In Motion with some of her OT/PT team

Faith with her favorite nurses for her History and Physical the week before her procedure

 The procedure itself took just over an hour. When I went to the recovery I could tell she didn't feel well and asked the nurse if she had thrown up. She said she did a little bit but they were able to suction it out of her mouth. I was a little surprised she got sick, especially considering how well she had done last summer when she went under for her dental work. But I also knew that considering where she was in her monthly cycle, it was normal for her to experience some nausea around this time of the month. 

It took her a while to fully wake up. They kept her there a little longer just because of her nausea plus her blood pressure was a little low. Finally, though she was able to go back to her room. Things looked promising when she ate some graham crackers and drank some juice. After checking her vitals three more times, they said she could get discharged. This time there was just one nurse and she was pretty busy so I said I could get her dressed. 

We got home around 2 in the afternoon. I tried to do a very watered down feeding at a slow rate to see how she did. She immediately became nauseous again. She told me she wanted to get out of her chair and sit with me on her bed. 

I think part of the issue was that she was feeling sore where they had done the four injections. I tried to talk her into laying down with me, but she refused, most likely because her tummy was upset. So we sat on the bed together for over an hour. I just sat in the most comfortable position I could and rocked her in my arms. She even fell asleep for about 10 minutes. 

She eventually seemed better and wanted to sit back in her chair. I gave her water through her tube and had her drink some juice from a straw. Later that evening, she asked for a feeding and I knew she was past the worst of it. Before going to bed, she asked if she was going to her day program tomorrow, and I told her she could. The doctor had told her she could back into her normal routine the next day. 

After sleeping for 10 hours, I was surprised when she woke up and didn't want to go to her day program. She said, "I just don't want to chance it." I knew she was afraid she was going to throw up again so I told her if she's not up to it then she could stay home. We just laid low all day and didn't do too much because the next day we had a very special dinner to attend.

Big Event #3: Grandpa and Grandma's Belated Anniversary Dinner 

My parent's 50th Wedding Anniversary was actually on June 3rd, which was just 2 days after my dad had partial knee replacement surgery.  Thankfully, he did very well with the surgery but it meant he would need to spend a majority of the summer doing physical therapy and recovering. 

My sisters and I thought maybe we could do something at the end of summer or in the fall. But it turned out that most of the family would be here the last weekend in July so we figured we should try to do something then. We kept it a secret until just a few days prior. They were both very surprised and appreciated the effort we had put forth. 


Grandma and Grandpa celebrating 50 years of marriage!

 
Many family members were able to celebrate with them.

Faith with Grandma, Grandpa, and some of her cousins.

Both of us had such a nice time!

Some of Faith's favorite girls in the world!

And her uncle, too, of course!

Faith and Grace (our amazing waitress who is also Grandma's favorite barista!

Faith's goals for the evening were to deliver Grandma and Grandpa's gift and get as many hugs from her cousins, aunts, and uncles as possible (see video below). As an added bonus, her Auntie Dawn gave her some monster cookies she had made just for her.

After all of that activity, she was still ready for church the next day. Shortly after getting home from her church, her aunt and cousins stopped over to say goodbye on their way back to South Dakota. And finally, our busy week had come to a close. I think we're both ready to get back to our regular routine and not have anymore major events for a while!

We hope everyone has a great rest of the summer!