Faith's Mom's Blog

When one thinks vacation, they probably don't think about Nebraska, especially in November! But when I heard that a friend of mine was going be having surgery in Omaha, I began thinking about how great it would be to go down that way, especially since my sister, Tesa has lived in Lincoln for 17 years, and I have never had the chance to visit.  Lo and behold, my dad had also been talking about heading South to Texas in November to hunt wild pigs. My two respite care workers were available to look after Faith starting on a Friday morning through Tuesday evening. All I had to do was book a flight so I could get back home.  Despite all the details falling into place, I was still anxious about it. I haven't flown since Faith was a baby, so I was especially nervous about that part. I prayed about it and believed that everything would be okay.  On the morning of my departure, Faith woke up just in time and her respite care staff was able to get her dressed and take her to her da...

Earlier this year I decided it would be fun to do something extra special for Faith's 21st birthday. Ever since I went to Bon Jovi a couple of years ago with my sisters, Faith has been telling me she wants to attend a concert, too.  When she was younger, I knew she could not have handled all the noise, and that a concert would be way too overstimulating for her. I did, however, take her to a NDSU Bison game a couple of years ago and she handled that like a champ! Because of how well she did with that, I began searching for concerts coming to the area.  The only one that I thought Faith might be remotely interested in was the Zach Williams Revival Nights Tour . The best part was that it was going to be held in Fargo just a few weeks before her birthday! The tour also featured Matt Mahar and CAIN, who both did songs that we sing in church.  First time ever at Scheels Arena in Fargo!  To make it even more exciting for her, I asked her dad if he could meet us in F...

When my dad told me he'd like to see Pembina Gorge sometime, I told him I had never heard of it. (I don't feel bad as I know many other North Dakotans who hadn't heard of it either!) In order to help make his dream a reality, I tried to schedule a weekend that my caregivers could come here to look after Faith. We settled on the first weekend in October. My mom decided to come as well. She said it would be the only nonmedical trip the three of us had taken together! We all hoped the fall foliage would be out in full force that weekend!  In preparing to go, I had typed up 3 pages of instructions for Faith's caregivers, one of whom was a loyal respite care provider who has been with us for over 3 years and also my sister. Both of them are very experienced and resourceful, but I printed out the instructions, nonetheless. Faith has been trying a new kind of food so that was a bit of an adjustment for them.  After dropping Faith off at her day program in the middle of a wind ...

This past weekend, Faith and I both got to experience the  Medora Musical  together - for the first time ever! We went with my dad and sister. The singing and dancing definitely met our expectations. After the National Anthem, some of the first songs they sang included, "Let's Hear it for the Boy" and "Dancing on the Ceiling." Both songs were a great and energetic way to start the show.  Faith was super excited, nearly dancing out of her chair! One reason she could hardly contain her excitement was that a few of the performers (Adam and Taylor) go to our church! The storytelling in between the musical numbers described how the little "cow town" of Medora came to be, as well as the influence that Theodore Roosevelt had in North Dakota.  View from our seats! Close up of the performers.  Auntie Dawn and Grandpa During the song, "Paint Your Dreams Across the Sky" by Dolly Parton, the cast invited the children to join them onstage. I wasn't ex...