Tuesday Tidbits - Oh No Not Again!

-
It seems Faith was just getting over her last three-week cold when she started coming down with another one. "Oh no, not again," was all I could think. 

Yesterday I sent her to school even though I knew she was tired because she hadn't slept well all weekend. One of her aides said it had been hard for her to stay on task and stay focused. Last night she was up at 3 a.m. so I knew she wasn't going to do well in school and kept her home. 

She has been sneezing and sounds a little stuffed-up, but I PRAY she has a good sleep tonight and she can kick this cold much faster than her last one.

Last week I took her in to see her pediatrician just to touch base with him since he was available. And of course she was perfectly fine then! He said she may have had RSV which can last three-four weeks. 

Hopefully that is not the case again this time. I told him I was concerned about her throat because she seems to get a sore throat a lot and was wondering if something was going on with her tonsils. He said as long as she is not snoring at night when she sleeps then her tonsils should be fine.

Last week we also celebrated Rob's birthday. I had bought him some miniature chocolate cupcakes and some ice cream. That evening, when we were having cupcakes and ice cream, Faith insisted that Daddy blow out some candles. 

I rummaged through the drawers and found a candle with the number 7, an unused candle left over from Faith's birthday.  So, we stuck that candle in one of the little cupcakes then Faith said we had to sing Happy Birthday. I guess she knows the routine!

I'm glad we had this one candle for Rob to blow out!

Last evening I received a phone call from my cardiologist at Mayo. He was filling in some information for a research study that Mayo was conducting with UCLA on women who have had the Fontan heart surgery and who have also been pregnant. 

The last time this study was done, which was in the 1990s - there were only about 15 women with the Fontan who had gotten pregnant. I'm very interested to know what those numbers are now.

In other news my brother, Todd and I are going to be opening our own Internet store on Zazzle, where we will be making and selling our own bumper stickers, t-shirts, tote bags and everything else you can stick a slogan on! 

Todd has been coming up with some good ideas for bumper stickers - especially for those in the oilfield. That's probably the last thing I need is another project, but I think it will be exciting! I'll be sure to let you all know when it officially opens.

One last exciting event for the week was that Faith lost another tooth!   

Faith's top front tooth was so loose I decided to gently pull it out!

Comments

  1. AnonymousMarch 1, 2011 at 7:51 PM

    Such a pretty toothless smile! Feel better soon, little Princess!

    ReplyDelete
  2. SJ ScottApril 29, 2011 at 8:40 PM

    My daughter has a DORV and is 27...glad you are doing well :) Totally different story for her as she has down syndrome as well. You have my prayers for yourself and your daughter...

    ReplyDelete
    Replies
    1. Cari JeanSeptember 22, 2012 at 12:43 PM

      Thank you so much for your prayers. I apologize this response is so delayed, I am going to check out your blog right now.

      Delete

Post a Comment

Most Popular Posts

My Little Vacay to Nebraska

-
Image
When one thinks vacation, they probably don't think about Nebraska, especially in November! But when I heard that a friend of mine was going be having surgery in Omaha, I began thinking about how great it would be to go down that way, especially since my sister, Tesa has lived in Lincoln for 17 years, and I have never had the chance to visit.  Lo and behold, my dad had also been talking about heading South to Texas in November to hunt wild pigs. My two respite care workers were available to look after Faith starting on a Friday morning through Tuesday evening. All I had to do was book a flight so I could get back home.  Despite all the details falling into place, I was still anxious about it. I haven't flown since Faith was a baby, so I was especially nervous about that part. I prayed about it and believed that everything would be okay.  On the morning of my departure, Faith woke up just in time and her respite care staff was able to get her dressed and take her to her da...
Read more

My Tetanus Shot Ordeal: A Real Pain in the Arm

-
Image
Last Wednesday I had my yearly doctor exam and when she said I should get my tetanus shot updated, I didn't think twice about it. The nurse said my arm would be sore for a couple of days, gave me a handout and stuck the needle in my arm.  The next day my arm was sore and although I found it a little harder to pick up and carry Faith, I was glad the pain wasn't going to last long. Boy was I wrong! But not only was my arm sore, my whole body was. I felt achy and extremely tired. According to a medical site on the Internet, these were mild side effects of the Tetanus shot. If these were only mild side effects, I would really hate to have them at a moderate or severe level. My arm is still red and sore on day 2 after my tetanus shot. On Friday, two days after getting the shot I felt so tired that I took a four-hour nap after getting Faith off to school. Then on Saturday I took a three-hour nap up until 7 o'clock, but still felt tired and was able to go back to sleep around 10. ...
Read more

Goodbye to Our Special Tomato Adaptive Car Seat

-
Image
Today we said goodbye to our Special Tomato adaptive car seat. And special it was. It helped Faith stay safe and secure in our Hyundai driving her back and forth to therapy appointments, shopping excursions, and many other activities. It also helped us through our time of not being able to afford an accessible van. Like all adaptive equipment , the special car seat was expensive and although it is the law that a child is secured in a car seat while traveling in a vehicle, neither health insurance nor Medicaid would pay for it.  Thankfully, we were able to receive funds from the fundraiser, the Great American Bike Race ( GABR ) which helps families pay for services and equipment that insurance doesn't cover for kids with cerebral palsy and related disabilities.  After doing research on the Internet and talking to Faith's physical and occupational therapists, we decided to go for the Special Tomato adaptive car seat. You would think something with that name would b...
Read more

Guest Post: Who Needs Sympathy?

-
Image
Guest Post by Stephen Gallup Last week, a columnist for the local newspaper interviewed me in connection with a memoir I wrote that’s being published this year. It was a comfortable, low-key discussion in which he asked about the basic facts regarding my disabled son Joseph and what I’ve learned that might be of value to other families. It was the sort of dialog that required no special preparation in advance. I just sat down with him and talked about the subject closest to my heart. But looking back on it now, one thing bothers me. In concluding the interview, the reporter expressed heartfelt sympathy for everything I’ve endured. He was being more than polite. I mean, he laid the compassion on with a spatula. Startled, and already thinking ahead to what I had to do next that day, I just thanked him and said goodbye. But now that final note troubles me. I don’t want sympathy! First of all, from the point of view of a new author hoping to promote his book, sympathy...
Read more