Faith's Mom's Blog

You know how kids come up with all sorts of excuses to not go to bed. They need a drink of water, they need to go to the bathroom, they need to make sure there's nothing under their bed or in their closet. My daughter is no different. I share a room with Faith. We are finally getting her to sleep in her own bed at night. It is an ongoing process. I am proud of her that she can fall asleep all on her own. She used to need to be cuddled, rocked and sang to. Now I put her in her bed and she falls asleep, after about 30 minutes, that is. No matter how tired she seems, it always seems to take a while before she finally drifts off to sleep. My husband and I agree that she has brains like us - it's hard to deactivate them. Last night, it seemed especially hard for her to fall asleep. Here is how are night went: 10:00 p.m. - I put Faith in her bed while she yells, "I want to stay awake, I don't want to go to bed." 10:05 p.m. - "Mommy could you help me out.&qu

When I pick Faith up at kindergarten she is full of excitement wanting to share all that she did at school. And then when Dad comes home from work she relates to him everything she shared with me. Both Rob and I love to hear about Faith's time at school but we noticed something. She talks a lot about the adults - her teacher, her teacher's aid, her therapists, her special ed teacher - not much about her classmates though. Recently at Faith's IEP (Individual Education Plan) meeting at school Rob voiced this concern. We know that Faith is more comfortable with adults. She has seen therapists since she was six months old. It took her a long time to warm up to her preschool classmates. Even after she warmed up to them, their sudden noises and movements would cause her to startle. Adults are more predictable to her than other kids and predictable for her is comfortable. At kindergarten Faith is around 18 other kids which causes her to proceed with caution. Her teacher assur

Yesterday Faith had her follow up appointment with her eye doctor after a two-month trial without glasses or eye patching. He seemed quite amazed that Faith's farsightedness had improved and that the muscles in her eyes were working so that her eyes were "lining up." Faith started wearing glasses when she was two years old for extreme farsightedness and esotropia - which means her eyes tended to wander inward. At that time the eye doctor told us that if glasses and eye patching did not correct this then she would need surgery. It took a while for Faith to get used to wearing her glasses but even when she did get used to them she didn't particularly like wearing them. She didn't mind the eye patch so much since it was just for half and hour a day and that's when we would read her books. Fast forward to July 2009. Faith lost her glasses. My husband and I think it must have happened while we were outside and she just threw them off without us knowing. The tim

Well, she caught it. It was probably inevitable but still I hoped. Faith caught my cold. Kids get colds everyday though, so why am I making such a big deal out of it? When Faith is sick, she doesn't sleep which means mom doesn't sleep. Another thing about Faith - she doesn't nap either. She has never been a napper. Oh how I envy my sister with her four-month-old who sleeps through family reunions and Cornhusker football games. (Live football games, that is.) So last night, there we were. After sleeping for about an hour, Faith woke up crying. Was it her tummy? Her throat? Her ears? No answer, just more wailing and lots of tears. Finally, she calmed down and we slept for another hour before she was up crying again. This time she fell back asleep relatively quickly. A couple of hours later though, she was up again. I asked her if I needed to vent her tummy. Sometimes, when she cries a lot or when she's swallowing extra saliva it gets into her tummy. I vented and it hel

After agonizing and praying over the decision to send Faith to school for half days or full days, we finally agreed that half days would be more than enough. I am finding that even only with half days at school, her schedule is full. She is quite the busy little bee. While she's at school from 8:30 to 12:30 five days a week, Faith has two occupational therapies, two physical therapies, two speech therapies, four sessions with her special education teacher, library time, music, recess and physical education. Not to mention a full one-hour feeding and time in her stander. I can understand why the school's recommendation was to have Faith in school for five full days a week. With all that she has to do at school, she is also there to learn academically. But it was ultimately her parents' decision and I believe we made the best one. When Faith comes home from her busy day at school she has her second feeding of the day and then after that she can finally get stretched and r

There's a song we used to sing in elementary school called "Up Up With People." Amazingly, I still remember all the lyrics. Up up with people, you meet them wherever you go. Up up with people, they're the best kind of folks you know. If more people were for people all people everywhere, there'd be a lot less people to worry about and a lot more people who care. I know that since the beginning of our journey of having a daughter with special needs, there have been many people who have been 'for us'. They have wanted what we wanted, the best for Faith. If I were to begin naming names, I know I would forget someone because there are just so many people that God has put in our path to help Faith grow and develop to the best of her ability. This list includes doctors, therapists, interventionists, teachers, teacher's aides, case managers, caretakers, counselors and even receptionists. Besides, professionals, however, there are also those who have prayed

Everytime I take Faith to school and then bring her back home, I am reminded of how God arranged for all of our needs to be met. Last spring, we were getting concerned about where we lived and how it was going to work for getting Faith to Kindergarten in the fall. The apartment we lived in, which was not handicapped accessible, was close to downtown and was close to Faith's preschool. During most of the time at this address, my husband stayed home to take care of our daughter. I worked in Mandan and had to take our only vehicle to work everyday. This wasn't a major problem for my husband because he simply walked Faith to her therapy sessions, walked her to preschool and was able to carry her and her chair up and down the stairs of our apartment. Things changed last November when Rob got a job and I was able to stay home with Faith. It was more difficult for me to carry Faith up and down the stairs and because of the winter we had, it was much harder getting her to school an