Faith's Mom's Blog

This year has certainly been a mix of blessings and challenges. Faith kicked off the New Year by getting another UTI. Along with that, she somehow managed to break a bone in her wrist and had increased anxiety due to some staff changes at her day program.  Also, she had gotten a new chair last August and we've already had to make numerous repairs and adjustments. All of these things have resulted in many extra appointments with doctors and specialists, including a urologist, orthopedist, psychiatric nurse practitioner, and DME technician.  Thankfully, the broken bone in her wrist healed on its own! We also got some good news that the slight curve in her spine has not gotten any worse and she doesn't seem to be having any pain in her back or hips.  We still don't have answers for the recurrent UTIs, and she is recovering from another one as I write this. I have tried a few different supplements to prevent them but haven't found the right one yet.  Hitting a huge miles...

Some people start their Christmas season the day after Thanksgiving. Not us! We actually wait until about the second week of December, when we go to the Nutcracker, put on by Northern Plains Dance . (Plus, this year, both of us were still recovering from covid in November!) Every year, Faith loves to see her friends perform onstage and visit with them afterward. We have been going to this performance since 2017, and it never ceases to amaze us! It's been so fun to watch the growth of her ballet friends as they take on more challenging parts each year.  Enjoying the Nutcracker for the 6th year in a row!  One new thing that I was able to do this year was go to the Lorie Line Christmas Concert. She has been coming to Bismarck for 30 years and I have always wanted to go, but it has never worked out. This year I was going to try to go with my parents, but then decided not to, as by the time I was going to get tickets, it looked nearly sold out. But then a friend of mine asked if I ...

Last week on the 25th, Faith celebrated her 20th birthday, which means she is no longer a teenager! That morning as we drove to her day program, she asked, "Mom how did I get to be 20 so fast?" In some ways, the time has crawled by, but in other ways, it has gone so incredibly fast.  Faith turns 20!  When it came to planning something for her birthday, she told me she didn't want a party. I knew though, that as soon as I didn't plan one, she would change her mind. And that's exactly what happened! A few days before her birthday she was asking me who is coming to her party. I was like, "What party?"  I had decided to just have a small gathering at our apartment. I'm glad I didn't opt for a bigger one at a larger venue, mainly because of the weather. Up until last Wednesday, we had been having the most beautiful fall ever. The colorful leaves were still on the trees and the grass was still green. We had gone to the pumpkin patch on October 19th and...

When my dad told me he'd like to see Pembina Gorge sometime, I told him I had never heard of it. (I don't feel bad as I know many other North Dakotans who hadn't heard of it either!) In order to help make his dream a reality, I tried to schedule a weekend that my caregivers could come here to look after Faith. We settled on the first weekend in October. My mom decided to come as well. She said it would be the only nonmedical trip the three of us had taken together! We all hoped the fall foliage would be out in full force that weekend!  In preparing to go, I had typed up 3 pages of instructions for Faith's caregivers, one of whom was a loyal respite care provider who has been with us for over 3 years and also my sister. Both of them are very experienced and resourceful, but I printed out the instructions, nonetheless. Faith has been trying a new kind of food so that was a bit of an adjustment for them.  After dropping Faith off at her day program in the middle of a wind ...

This past weekend, Faith and I both got to experience the  Medora Musical  together - for the first time ever! We went with my dad and sister. The singing and dancing definitely met our expectations. After the National Anthem, some of the first songs they sang included, "Let's Hear it for the Boy" and "Dancing on the Ceiling." Both songs were a great and energetic way to start the show.  Faith was super excited, nearly dancing out of her chair! One reason she could hardly contain her excitement was that a few of the performers (Adam and Taylor) go to our church! The storytelling in between the musical numbers described how the little "cow town" of Medora came to be, as well as the influence that Theodore Roosevelt had in North Dakota.  View from our seats! Close up of the performers.  Auntie Dawn and Grandpa During the song, "Paint Your Dreams Across the Sky" by Dolly Parton, the cast invited the children to join them onstage. I wasn't ex...