|Me and my sweet little girl|
Her fit escalated to screaming and yelling for over an hour. It was impossible to bend her into her chair as all of the high tone in her body was operating at full force. I felt really bad when I left Rob to deal with her on his own but there wasn't much more I could do.
Friday morning went better and she only went to school for half the day. In the afternoon she had an appointment with her pediatrician and then after that she was fitted for new foot orthotics. At her doctor's appointment, Rob discussed our concerns about her fatigue from a full week of school, her extreme gassiness and some feeding issues. He gave us a prescription to deal with her overly gassy tummy and suggested giving Faith a few afternoons off from school during the week.
Because she is constantly fighting her tone all day long trying to do things like drive her chair, work on her computer and keeping her head up, she uses much more energy than her classmates. She burns her calories faster than they are given to her. No wonder she runs out of steam at the end of the week!
|This photo was from a few years ago when Faith was fitted for her last pair of orthotics.|
After her doctor's appointment, Rob took her to get new foot orthotics. She may not be getting bigger around the waistline but she is getting bigger feet! It is sort of a long process that involves cold, gooey paste-like stuff getting wrapped around her feet and just above her ankles. She was very patient and was glad to see everyone at pediatric rehab again. Since starting her therapies at school, she doesn't go over there as much anymore. Afterwards, she had to go home for a quick feeding, then they came to get me after work. We made it home just in time to watch Wheel of Fortune.
I'm thankful it is the weekend so Faith can get some rest. For me, I'm going to be spending a lot of time praying for wisdom on how we can best help our daughter at this stage in her life.