Faith was so excited last weekend when I told her they were having wheelchair soccer again. Her first question was, "Can Adam push me again?" I told her I had no idea if he even went to school at the University of Mary anymore. When we got out there, she was disappointed to learn he had another obligation that day. Everyone assured us Adam would be there next time. She still had fun with a few other guys from the college soccer team who pushed her around to help her play.
In wheelchair soccer, they don't use a normal soccer ball, instead it's
more like a beach ball. Normally, the soccer players who are pushing the
kids around throw the ball to each other then help the kid they are
pushing hold onto it as they try to get into the net. She had so much fun and the faster they pushed her, the bigger the smile
on her face.
Ramsey helps Faith with the ball
Faith making friends
Faith having fun with Garrett the goalie
This weekend, despite the fact she was suffering with a terrible cold
and hadn't
gotten a lot of sleep, she still wanted to play. She was thrilled to be reunited with Adam, who I found out was a
junior in college and had come to Bismarck all the way from Ireland.
Although the organization, Dreams in Motion,
has other adaptive sports throughout the year for those in wheelchairs
and other mobility challenges, I can't convince Faith to try them. (Although, she
did try curling once.) They also have basketball, tennis, skiing, sled
hockey and dance. Soccer is her favorite and unfortunately they only
have it a couple of Saturdays a year, although they might try to get an
outdoor game going in the Spring. We also told Adam we would love to see
him play when his soccer season starts at school in late summer.
Faith taking a break
Faith and her all-time favorite soccer player
Everyone's a winner!
Dreams in Motion is a great organization for planning these events. I was also impressed with the dedication of the soccer players from the University of Mary who took time out of their Saturdays to help out and spend time with the kids. You can click on the video below to see everyone in action!
Today marks Faith's 8th day of school and we are all adjusting to a new schedule. Faith has made huge strides this past summer in sleeping better and having more energy so we decided to have her go to school from 9:00 a.m. to 3:00 p.m. 5 days a week. This is a change as last year she did not go Tuesday and Thursday afternoons due to how tired and worn out she would get. Faith's first day of 4th grade School starts at 8:30 a.m. but we asked if it would be okay for us to get her there at 9:00 instead. This allows us to more time to get her first feeding into her before she even gets to school. Her aides noticed last year that when we brought her to school without any food in her tummy, she was pretty sluggish and tired upon arrival. Sometimes, after getting her to school she wouldn't start getting her feeding until after 9:00 a.m. which meant, that because she gets a feeding every 3 hours, her last feeding of the day didn't end until 10:00 p.m. Another advantage to
Last Wednesday I had my yearly doctor exam and when she said I should get my tetanus shot updated, I didn't think twice about it. The nurse said my arm would be sore for a couple of days, gave me a handout and stuck the needle in my arm. The next day my arm was sore and although I found it a little harder to pick up and carry Faith, I was glad the pain wasn't going to last long. Boy was I wrong! But not only was my arm sore, my whole body was. I felt achy and extremely tired. According to a medical site on the Internet, these were mild side effects of the Tetanus shot. If these were only mild side effects, I would really hate to have them at a moderate or severe level. On Friday, two days after getting the shot I felt so tired that I took a four hour nap after getting Faith off to school. Then on Saturday I took a three hour nap up until 7 o'clock but still felt tired and was able to go back to sleep around 10. On Sunday, finally the fatigue started wearing off and I didn
Today we said goodbye to our Special Tomato adaptive car seat. And special it was. It helped Faith stay safe and secure in our Hyundai driving her back and forth to therapy appointments, shopping excursions and many other activities. It also helped us through our time of not being able to afford an accessible van. Like all adaptive equipment , the special car seat was expensive and although it is the law that a child is secured in a car seat while traveling in a vehicle, neither health insurance nor Medicaid would pay for it. Thankfully, we were able to receive funds from the fundraiser, the Great American Bike Race ( GABR ) which helps families pay for services and equipment that insurance doesn't cover for kids with cerebral palsy and related disabilities. After doing research on the Internet and talking to Faith's physical and occupational therapists, we decided to go for the Special Tomato adaptive car seat. You would think something with that name would be r
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