Faith's Mom's Blog

Phew! What a weekend! I'll try to give a recap of everything that has happened over the last three days. On Saturday we went to one of Faith's favorite places - Papa's Pumpkin Patch. It was the perfect way to celebrate her birthday and the fantastic Fall season we have had. It was about 50 degrees but still nice because there was no wind!  Faith had a blast, especially with her a few friends from school. She was very blessed with lots of wonderful gifts, especially lots of new pajamas, which she really needed. Faith and her friends blowing out her birthday candles On Sunday Faith went to a friend's house for a Halloween Party. There was a total of about 25 kids all dressed up in very cute costumes such as Jesse and Buzz Lightyear from Toy Story , a few princesses, a butterfly, a pumpkin, a cowgirl, a monkey, Dorothy from Wizard of Oz and Faith went as Supergirl. The highlight of the party was a blow-up haunted house that the girls would run through screaming a...

This gift given to me Seven years ago... Not given swaddled in pink and laid close by my side. Instead placed in a see-through box helping to breathe breaths of life. A single touch lasting only seconds not to be seen for several hours. Seven days later, finally in my arms to hold. This gift given to me so undeservedly... Did God really know what He was doing Giving me this treasure for which to care? Thankful. Blessed. These words do not even begin to express what I feel, what I know, what I have. Tough times, yes Challenges, of course. But still joy And love...so much love. Seven years ago This gift, given to me... My heart, my soul forever changed. Happy Birthday, Faith! You are loved!

Faith was so excited to go to school today because she got to wear her pajamas!

This month has been crazy with appointments, meetings and unfortunately for me a bit of sickness as well. Here are some tidbits from the last week or so. Last week I went to the doctor and was diagnosed as having walking pneumonia. She prescribed some heavy-duty antibiotics so along with taking those, I tried to get as much rest as possible. Now that I have my energy back, I need to make up for lost time, especially when it comes to cleaning and organizing! We had our first parent/teacher conference with Faith's teacher. It's hard to believe she has been in school for nine weeks already! We met with her teacher along with her special education teacher, her speech therapist and occupational therapist. They all said she is such a joy!  She is doing really well with knowing her letter sounds and learning some sight words. She's also doing great in her power chair at school. The only issue they have had is that she doesn't seem fully supported in her chair and they f...

The Healing Rooms is a Christ-centered prayer ministry Usually on Mondays, Faith and I head over to the Healing Rooms of the Northern Plains for prayer. Every once in a while, it works out for us to go as a family. We have been going there ever since Faith was a baby before we even lived in Bismarck. We have become good friends with the directors as well as many other prayer team members. It is a wonderful place of peace, and we feel so blessed to be able to go there for prayer. Just yesterday, Faith and I went and were very blessed. In the little "waiting room" we filled out our prayer requests and then the receptionist took them back to a prayer team. I had requested prayer for Faith's left hip. Because of the high tone in her legs, her left hip is slowly being pulled out of its socket. One of our options to help this is to get a baclofen pump inserted that would administer medicine to her spine to help loosen her muscles. It is a huge decision, and I am fearfu...

As I sat there, listening to the four of them talk, I asked myself, "How many professionals does it take to figure out what's going on with my pacemaker?" I was thankful for the comfy chair I was sitting in because it looked like this was going to take a while. All I could do was sit there and listen to them talk about me. It's not like I could go anywhere since I was all attached with leads and a big magnet on my chest. I didn't fully understand the terms they were throwing out - P-waves, QSRs, far-field R waves, etc. I did however understand the part where they were trying to figure out if my heart was going into atrial fibrillation. This whole mystery had begun in early September when I went to the pacemaker clinic for a routine checkup. A few days later my cardiologist from Mayo called and asked how I was feeling. It appeared I was having some arrhythmia. He wanted me to wear a 24-hour Holter monitor to try to figure out what was happening. Because of a fe...