Faith's Mom's Blog

At the end of March, I found myself heading east on I-94 with my parents, leaving my husband and daughter behind. An hour into our trip, my husband called because Faith wanted to talk to me. In near tears, she asked if I was going to be home soon. Oh my breaking heart. The last time I had been away from her for more than a day was probably about 9 years ago. The reason for my departure had started back in January when I began fasting along with our church. In my journal on that first day, I had written that I wanted God to reveal any internal problems or heart issues I needed to deal with. I was speaking of spiritual issues, but in His goodness, He also revealed some physical problems that needed taken care of. During the fast I became extremely fatigued and didn't feel well at all. I began having chills and my husband encouraged me to start eating solid foods. I began eating soup, oatmeal, and other easy-to-digest foods, but none of it made me feel any better. Eventua

Every year I try to get Faith to come up with a thankful list so that we can remember what Thanksgiving Day is all about. But really, though, Faith is pretty good at being mindful of the things she is thankful for throughout the whole year. Here are some of the things that made her list this year: Family - She really does love her family, including all four of her grandparents, her aunts, uncles, and cousins. This year, a new baby joined the family - my great niece, Marla. Faith loves seeing her and likes to say she is her "big cousin." Besides seeing all of her mom's side of the family on a regular basis, she also enjoys talking to her auntie Joh to hear all about her pets - Rosie and Ruby. She even gets to hear Ruby purr over the phone. She also likes talking to Rob's parents whom she calls grandfather and grandmother. Faith at her grandma and grandpa's house with most of her cousins  Prayers -  She still loves having people pray for her, and some

Twelve years ago in late April, we were given the dreaded news that our daughter had spastic quadriplegia - the most debilitating form of cerebral palsy.  I will never forget looking down at my six-month old baby, fast asleep in my arms, while her doctor talked about the possibility of her being in a wheelchair as she became older.  At the time, it was not like me to show such public displays of emotion but on that day I couldn't hold back the tears. In the days that followed I had so many questions.  Of all the questions though, there was one that I asked more often than others. "Can God heal my daughter?" I came to believe that He could, even though I knew it would take a miracle.  Faith shortly after we brought her home from the NICU where she had a 73-day stay By definition a miracle is, " an unusual or wonderful event that is believed to be caused by the power of God." When a true miracle occurs, there is usually no scientific explanation for

For the past couple of years instead of making New Year's resolutions, I have instead chosen just one word to focus on throughout the year. (I got this great idea from my friend, Fran Dwelle of JOY International.) Last year my word was strength and my corresponding scripture was " The Lord is my light and my salvation, whom shall I fear? The Lord is the strength of my life, of whom shall I be afraid?” (Psalm 27:1). This year, without even realizing it rhymed with the age I would be turning, I chose the word, "RENEW." The corresponding scripture the Lord gave me was this one: Create in me a clean heart O God and renew a steadfast spirit within me . (Psalm 51:10) First and foremost the one thing I wanted to renew was my relationship with the Lord. Not that I felt I had fallen away or anything but because I wanted to have a deeper, more intimate relationship with Him than ever. I have a strong desire to hear Him more clearly and to operate more in the realm o

It has been a truly amazing weekend! I am feeling tired but have so much peace right now. Today we had the honor of meeting Cal and Michelle Pierce, directors of the Healing Rooms Ministries. They were also the speakers at the Love Unleashed conference held by the Healing Rooms of the Northern Plains. Me, Rob and Faith with Cal and Michelle Pierce Yesterday, Rob, Faith and I ventured to the Belle Mehus for a couple of sessions of the conference. We knew it would take some coaxing to get Faith there as she generally isn't too sure about new ventures. It helped she's been to the Belle Mehus before so at least the venue was a little bit familiar to her.  Faith received a very warm welcome when we arrived. She was happy to see so many volunteers from the Healing Rooms all gathered together at the same time! She also seemed to enjoy the worship. That was familiar to her too since the members of the worship team were from our church! We were delighted to hear Michelle P

One of Faith's favorite places to go is the Healing Rooms of the Northern Plains . I'm not kidding! If they were open seven days a week - she would be there everyday. As it is they are open on Mondays and Tuesdays and most weeks she wants to go both days. We have been taking Faith to the Healing Rooms since we first moved here ten years ago, which is also shortly after they opened here in Bismarck. One reason I think Faith loves going there so much is the peacefulness she feels as soon as we walk through the doors. Another reason is because she just loves to go there to visit with the volunteers that she has gotten to know quite well over the years She knows all of them by name and is quick to remember any new members of the prayer team. The first thing we do when we get to the Healing Rooms is greet whoever is at the desk and they hand us a clipboard so that we can jot down our prayer request. She usually tries to get them to say who is going to be on the prayer team tha

The book, In Sickness and in Health: Lessons   Learned on the Journey from Cystic Fibrosis to Total Health  by Mandy B. Anderson, is the author's personal story of what life is like living with what doctors call an incurable disease. In reading her story, I felt like I could completely relate to her. Although my diagnosis of a congenital heart defect is much different than hers, all the ways in which being a sick kid can take an emotional toll, is very much alike. For instance, most kids don't ever have to think about dying an early death or having doctors put an expiration date on your life. This cannot only be emotionally devastating but spiritually devastating as well as "words of death" are constantly being spoken over you. As a kid, you can feel the fear and anxiety in those around you so you take it upon yourself to be the "brave" one. You learn how to mask and hide your true feelings and inadvertently start pretending to be someone you are not.

This past year has held many challenges, many changes and some breakthroughs as well. We have met some new people who have helped Faith make forward progress but have been discouraged as certain prayers continue to go unanswered. Through it all though, there is one truth that remains - God has been with us and He has been faithful. He has placed many people in our lives who have kept us encouraged and who continue to inspire us each and every day to to "walk by faith not by sight." As I think about our past year, I can't help but feel hopeful that the New Year will be better than the last! JANUARY - Me and Faith spent the tail-end of last year and the beginning of 2013 recovering from the flu. In fact, she was at the walk-in clinic on New Year's Eve. We recovered just in time to celebrate the NDSU Bison winning their second straight national championship. This year they are once again headed to Frisco, Texas to defend their title as they take on Towson Universi