Faith's Mom's Blog

I think North Dakota forgot all about spring this year and just went right into summer. As our pastor said in church last week, "I guess North Dakota likes quick transitions!" It seriously seemed like one day the ground was still brown, the trees still bare and there wasn't a robin in sight then the next it was like the exact opposite. While everyone was certainly getting tired of old man winter, we sure weren't ready for 90 degrees! Faith enjoying being outside at Michelle's with her ducks! Besides it feeling like summer, I am thankful that it really is summer vacation and that Faith is done with school this year! She did so well the first half of fourth grade and somewhere along the way around Christmas vacation she seemed to really be struggling. We chalked it up to her high muscle tone protesting the frigid temperatures. When it started warming up a little, though there were days she still struggled to get to school. In February she came down with a sin

As a child who has a feeding tube, Faith doesn't really have reason to look forward to a big Thanksgiving dinner. Throw in the fact that she has not been feeling well this past week and woke up yesterday morning crying and gagging on mucous, she didn't have much of a Thanksgiving. So for her Thanksgiving celebration,  I told her that we could make a list of things she is thankful for and she was happy doing just that. She also had me help her write little letters to her friends and family saying things like, "Thank you for coming to church" or "Thank you for letting me come visit you." It was really sweet and she came up with about 20 people she wanted to write letters for. I think this says a lot - that she is simply thankful for the people in her life. Thankfully, she feels much better today. Here is her list for things she is thankful for:  Faith doesn't miss Wheel even when we'ere on vacation! Mommy and Daddy Wheel of Fortune

One of the main reasons we sought chiropractic care for Faith was to help her with her startle reflex. Most people startle when they hear a loud, sudden noise but for Faith her startle can be debilitating. When she was younger if she startled often in a short amount of time, she would break down in tears. Her startle made it difficult to do things like being in a school program and something like going to the movies was totally out for her. It was hard to watch her startling constantly during a church service when someone spoke into a microphone. Her whole body would tense up making it impossible for her muscles to relax. Besides her startle, we were also having a tough time dealing with her emotions and behavior. She would have screaming fits that left me and Rob feeling helpless, not knowing what to do to help her. We thought as she got older, things would get better. But last year during school, her tantrums escalated and we chalked it up to pure exhaustion. Her pediatrician e

Have you every felt this way?  I know I need to lift my eyes up But I'm too weak Life just won't let up And I know that You can give me rest So I cry out with all that I have left My prayers are wearing thin And I'm worn  Even before the day begins I'm worn I've lost my will to fight I bet there are a lot of special needs parents or parents with very young children who can relate to these words. I know I can. Whenever I hear the song, Worn which contains the above lyrics, I am transported back in time when Faith was a little baby. I was working full time during the day and trying to look after her at night. She did not sleep well, which meant neither Rob nor I sleep well either. To make things even harder, Rob worked overnights on the weekends. I was in a major state of sleep deprivation. I started drinking caffeine and eating sugar everyday at work to help me stay awake. It didn't help that my thyroid was out of whack. Eventually I

We are currently on day four with no working elevator in our apartment building, one that it is supposed to be handicapped-accessible. It has been a little frustrating to say the least. It was supposed to be fixed on Wednesday afternoon but we are still waiting. No working elevator in this apartment building It has been going out off and on recently but just once was it a major inconvenience when we were getting Faith ready to go to school and realized the elevator was not working. Needless to say, she was late for school that day. This time we discovered the elevator was out on Monday after we called the Healing Rooms and realized they were open. We gleefully got bundled up in our winter attire - even the below-zero temperature was not going to stop us. We ran into a major disappointment though when we got to the elevator and realized it wasn't working. We went back to our apartment and figured out what to do next. We thought about having the Healing Rooms come to us beca

This week has definitely been interesting for our family. I started my new work schedule on Monday and it was so wonderful crawling into bed with Faith in the morning and gently waking her up. When she realized I was in bed with her, she said, "Mommy are you getting me ready for school today?" I pretended not to know how to get her ready for school so she proceeded telling me what to do and in what order. When I gave her a kiss goodbye she had the sweetest smile on her face. Me and my sweet little girl Rob was able to drive me to work since he needed the van that day. It all worked out perfectly and I was so happy to have spent the first part of the morning with Faith. Now fast forward to Thursday. Faith woke up saying she didn't want me to get her ready for school and when I tried to start the routine she became quite upset and demanded me to call the school to cancel. Where oh where was my sweet little girl? Her fit escalated to screaming and yelling for over an

Faith in her favorite pajamas  I can definitely tell that Faith is back in school. Last night we were putting a puzzle together and she began telling me a story. I glanced away for just a second and she said, "Mommy, are you being an active listener?" She seems to be taking in a lot at school and everyday she comes homes with lots of stories including learning to play "Simon Says" and the new friends she is making. She really seems to like her teacher. She has had trouble with some of her feedings at school for which we are making adjustments. The only really tough part about her and school is getting her there. Every morning we have a major battle getting her out of her pajamas and getting her dressed. She loves to wear her jammies! And she must like me to wear mine as well because as soon as she notices I've changed from my pajamas to my clothes, the battle begins. She knows it's soon time for her to get out of her pajamas and into her clothes. She

I honestly don't think people believe me when I tell them, yes Faith does get mad and yes, she does throw tantrums. They look at Faith and see a sweet, well-behaved little girl who can do no wrong. HA! Yesterday, though, Faith herself told everyone in the therapy waiting room that she had to have a timeout. Of course they had to believe her, because Faith is too good of a girl to lie about something. (Or so they think!) It all began when I told Faith we had to get ready to go to therapy. She was really into her DVD she was watching and didn't want to leave. "I'm not going to go, I'm not going to go," she yelled at the top of her lungs. I struggled to get her out of her chair because she needed to be changed before we left. She cried the whole time I was changing her. Then I attempted to get her back into her chair. She recently learned this new little trick that if she kicks her tone in as hard as she can, she becomes stronger than her mom. It is impossible

I don't usually use the old cliche, Thank God Its Friday or TGIF but today I really am thanking the Lord it is Friday. This week has been a bit of a rough one for the whole Bousfield family. Monday - Faith had the day off from school for an unused snow day or something and thank goodness she did because she woke up at 6:30 a.m. throwing up. After getting her changed, me changed and her bed cleaned up, she did a repeat about 30 minutes later. She continued to do so until mid-afternoon until there was absolutely nothing left in her poor little tummy. Later that afternoon, she seemed to be feeling better so a gave her a mixture of pediasure/water and she kept it down. Tuesday - Faith and I woke up to find Rob at home on the couch. Now he was throwing up and had called in sick. I kept Faith home from school to make sure her feedings were going to continue going okay. Although tired, she did make it to occupational and speech therapy in the afternoon but ended up having a diarrhea