Today I thought it was quite fitting that on my one year anniversary of my new pacemaker, I was wearing a 24-hour Holter monitor! It's not because I'm having any issues with my pacemaker. Instead, I'm just preparing for my upcoming cardiology appointment next month.
Thankfully, my cardiologist from Mayo comes here to Bismarck, so I don't have to make the 1,000-mile round trip again! By the way, isn't amazing how small these Holter monitors are nowadays? I remember having to wear much larger ones that could not be hidden very easily, plus it was hard to sleep being attached to a big clunky machine. Last night, I hardly even knew this little one was there!
I got my original pacemaker in August of 1999 but because the lead was getting old, my cardiology team wanted me to get a new one. It was last year on this day that I was recovering from the procedure. It still bends my mind how God took care of every single detail and that I had found enough people to look after Faith for the five days (and four nights) that I was gone.
I am still incredibly grateful for all those who stepped up to look
after her. I'm also thankful my sister was able to take me there. Faith
still talks about it like it just recently happened. She often mentions
that her aunt and little cousin stayed with her a couple of nights and
how patient she had to be.
She also talks about how our friend Mandi looked after her, and she even had her kids and husband come over to visit.
I don't know what I would have done without her as she came every
morning to relieve the overnight staff and get Faith out of bed. She
even sent me a picture of Faith every day!
Faith had loads of fun while I was gone!
Faith told me when Grandma and Grandpa were here, Grandpa did his
crossword puzzle and then took a nap. (It's just funny which details she remembers!) There was also the respite care
staff who stayed over a couple of nights and also a few other friends
who helped out. She will truly never forget it. Most of all though, I
think she is proud of herself for getting through that time and being so
mature. It helped that I got to talk to Faith every day and even did a
couple of video chats with her, which she loved.
Even though
it was for a medical procedure, my sister and I made the best of it and
had plenty of laughs along the way. Especially when on the way home our
sister was heading back from a work trip and we managed to catch up to her on
the Interstate, which you can see in the video below!
The double rainbow we spotted just as we crossed into Minnesota
After driving in the dark (and rain) through the Cities, we were very thankful to reach our comfy hotel room.
Our hotel was conveniently located just across the street from where I would be having my procedure. This is also where I had my last open heart surgery in 1999 and my original pacemaker implantation.
Taking the shuttle from our hotel to the downtown campus for a day of medical tests.
Hanging around waiting for the last appointment of the day.
My sister even was able to get some work done!
After a long day, we were able to eat at our favorite restaurant in Rochester!
Me after my procedure...I was just a tad groggy!
Grateful that things went so well!
After a night in the hospital and an extra day recovering, we were ready to hit the road again!
Who is that ahead of us on the Interstate? Let's find out!
Tired but happy sisters reunited in Bismarck!
Grandma is there too, and Faith is super excited to have us all there!
Hopefully it will be awhile before I need to go to Mayo again for a medical procedure. If I do though, I know God will provide and Faith will be well looked after!
Today marks Faith's 8th day of school and we are all adjusting to a new schedule. Faith has made huge strides this past summer in sleeping better and having more energy so we decided to have her go to school from 9:00 a.m. to 3:00 p.m. 5 days a week. This is a change as last year she did not go Tuesday and Thursday afternoons due to how tired and worn out she would get. Faith's first day of 4th grade School starts at 8:30 a.m. but we asked if it would be okay for us to get her there at 9:00 instead. This allows us to more time to get her first feeding into her before she even gets to school. Her aides noticed last year that when we brought her to school without any food in her tummy, she was pretty sluggish and tired upon arrival. Sometimes, after getting her to school she wouldn't start getting her feeding until after 9:00 a.m. which meant, that because she gets a feeding every 3 hours, her last feeding of the day didn't end until 10:00 p.m. Another advantage to
Last Wednesday I had my yearly doctor exam and when she said I should get my tetanus shot updated, I didn't think twice about it. The nurse said my arm would be sore for a couple of days, gave me a handout and stuck the needle in my arm. The next day my arm was sore and although I found it a little harder to pick up and carry Faith, I was glad the pain wasn't going to last long. Boy was I wrong! But not only was my arm sore, my whole body was. I felt achy and extremely tired. According to a medical site on the Internet, these were mild side effects of the Tetanus shot. If these were only mild side effects, I would really hate to have them at a moderate or severe level. On Friday, two days after getting the shot I felt so tired that I took a four hour nap after getting Faith off to school. Then on Saturday I took a three hour nap up until 7 o'clock but still felt tired and was able to go back to sleep around 10. On Sunday, finally the fatigue started wearing off and I didn
Today we said goodbye to our Special Tomato adaptive car seat. And special it was. It helped Faith stay safe and secure in our Hyundai driving her back and forth to therapy appointments, shopping excursions and many other activities. It also helped us through our time of not being able to afford an accessible van. Like all adaptive equipment , the special car seat was expensive and although it is the law that a child is secured in a car seat while traveling in a vehicle, neither health insurance nor Medicaid would pay for it. Thankfully, we were able to receive funds from the fundraiser, the Great American Bike Race ( GABR ) which helps families pay for services and equipment that insurance doesn't cover for kids with cerebral palsy and related disabilities. After doing research on the Internet and talking to Faith's physical and occupational therapists, we decided to go for the Special Tomato adaptive car seat. You would think something with that name would be r
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