A Jam-Packed Month of May

-
The month of May is already nearly over! But it makes perfect sense why it went by so fast, because this month was jam-packed. It's hard to believe that June is just around the corner. I can share in our pastor's sentiment when he said the year is half over, but it seems like 2013 has just begun!

On the first Thursday of May, JOY International had its last Java JOY of the season. We had a great get-together as we celebrated moms and discussed the powerful prayers of a mom. We had a wonderful panel of three amazing moms who shared their hearts on praying for their children. 

We also shared testimonies of answered prayers for ourselves and our children. As Java JOY coordinator, I am relieved to be taking some time off, but I already have lots of ideas for our next season which starts up again in September!
 
Me with our mom panel at Java JOY



Me and Faith on Mother's Day

Me and Faith playing our favorite game - Wheel of Fortune

At the beginning of the month, we had another round of Anal Baniel Method (ABM) lessons for Faith. This time she had six lessons as opposed to four the previous time in March. In July, when Pati comes back to Bismarck, we are hoping to get Faith in for eight sessions. We won't have to schedule around school so more lessons will be much easier to do.

This last time around, Pati showed us some weight-bearing techniques that do not involve her being tightly strapped in her stander. She also did something with Faith I would have never thought possible - she had Faith in a kneeling position on her knees being supported by the bed. Doing things like kneeling seems like such an easy thing to do but for a child with spastic muscles, these movements can be nearly impossible.
Pati working with Faith during a session in March

Pati said there is so much she wants to do with Faith and wishes she could see her more often. It really is optimal that when kids start having ABM, they have lessons every three weeks. With Pati coming here from Wisconsin, this is just not a reality unless we started taking Faith to see Pati in Minneapolis. There is a ray of hope, however.

One day after Faith and I were leaving from one of her lessons, we ran into one of Faith's former speech therapists. Some of this speech therapist's patients have been doing ABM. She was so impressed with the results, that she is taking lessons to become an ABM practitioner. It would be so wonderful to have someone who could be here in Bismarck full time - not just for us but for the many kids who could benefit from this alternative form of therapy.

Besides ABM, Faith has been super busy in school this month. They try to pack in as many activities as possible before the school year ends. Rob took her to two field trips - one at Bismarck State College for a water festival and one at the University of Mary for fun and safety day. She also went on a class picnic at a nearby park. Faith had a great last week of school and I know she is especially going to miss her teacher who is retiring after 30 years of teaching. 

Ever since Faith was a kindergartner at Centennial, she and this teacher have had a very special relationship. They just sort of took to each other right away and when Faith reached third grade, we were so excited that Faith would have her for her teacher. In fact, during Faith's open house before starting school this year, her teacher told her, "Faith, we've been waiting for this since kindergarten!"

Faith with her very special teacher, Mrs. Ternes

Recently this month, I took part in classes at the Healing Rooms. I have taken the classes twice before but this time, the classes were in preparation for becoming part of the Healing Rooms ministry. I have sent in my application and my pastor also sent in a letter for me. This afternoon I have my interview with the directors.

I know they are needing help in the reception area so that is what I hope to do but, in the future, I would love to be part of their prayer team as well. We have been going to the Healing Rooms for prayer ever since we moved here in 2004 when Faith was just eight months old. By volunteering, I am hoping to be able to give something back to this ministry that has been so instrumental in our lives.

Aunt Audrey 

On a sad note, we lost our precious Aunt Audrey on May 9th. She had been fighting various illnesses and this month, her health continued to deteriorate. It was hard for Rob being so far away as it just wasn't possible for him to travel to Toronto for the funeral.

Aunt Audrey was a very kind, caring and generous person. She only got to see Faith three times, but Faith was very special to her. She was an avid reader of this blog and loved to keep up-to-do date with Faith and her progress. She will truly be missed by many.

I think that pretty much sums up our busy month of May. We are looking forward to using Faith's time off of school to make some changes in her therapy, her diet and other areas. We are also looking forward to seeing Rob's parents in Winnipeg next month! We only get to see them every couple of years, and I know they will be amazed at how much Faith has grown this year.

Happy Summer Everyone!

Comments

Post a Comment

Most Popular Posts

My Little Vacay to Nebraska

-
Image
When one thinks vacation, they probably don't think about Nebraska, especially in November! But when I heard that a friend of mine was going be having surgery in Omaha, I began thinking about how great it would be to go down that way, especially since my sister, Tesa has lived in Lincoln for 17 years, and I have never had the chance to visit.  Lo and behold, my dad had also been talking about heading South to Texas in November to hunt wild pigs. My two respite care workers were available to look after Faith starting on a Friday morning through Tuesday evening. All I had to do was book a flight so I could get back home.  Despite all the details falling into place, I was still anxious about it. I haven't flown since Faith was a baby, so I was especially nervous about that part. I prayed about it and believed that everything would be okay.  On the morning of my departure, Faith woke up just in time and her respite care staff was able to get her dressed and take her to her day prog
Read more

Some Thoughts on World Prematurity Day

-
Image
November 17 marks World Prematurity Day . One might wonder why awareness needs to be raised about premature births. Well, I can tell you firsthand that it is a really good thing when more people are aware of the risks and complications, not to mention the emotional toll, of having a baby born too early. Having a baby born prematurely is not something most expectant parents think about until it happens to them. Most moms-to-be who first learn they are pregnant automatically think they have seven or eight months to prepare for one of the biggest days of their life. Expectant parents usually have one response when asked if they are hoping for a boy or a girl - "As long as the baby's healthy." But sadly, sometimes that's not always the case - especially if the baby is born too early. I will never forget the book I was reading shortly after finding out I was pregnant with Faith - "What to Expect When You're Expecting." It was a great resource that o
Read more

Faith Turns 21!

-
Image
 Faith's 21st birthday was on Friday the 25th and it ended up being an all-day celebration! She didn't sleep well the night before, so I was a little concerned she would run out of steam, but she just kept going! It ended up being a beautiful fall day, so I didn't even need to put a jacket on her, which is rare for the end of October.  Faith in her new birthday shirt!  This year, she was able to bring cupcakes to HIT. Last year, due to the dietary restrictions of her peers, she didn't bring any treats. This year, however, she is a new room, where they truly love their snacks! After I dropped her off, I raced around like a maniac getting her ballons, presents, and everything else ready for the surprise party we would be having at the end of the day.  Faith with some of her staff making a cupcake delivery.  When I picked her up from her day program, I informed her that some friends of mine that I worked with wanted to give her a special birthday treat. So, we made our way
Read more

Guest Post: Who Needs Sympathy?

-
Image
Guest Post by Stephen Gallup Last week, a columnist for the local newspaper interviewed me in connection with a memoir I wrote that’s being published this year. It was a comfortable, low-key discussion in which he asked about the basic facts regarding my disabled son Joseph and what I’ve learned that might be of value to other families. It was the sort of dialog that required no special preparation in advance. I just sat down with him and talked about the subject closest to my heart. But looking back on it now, one thing bothers me. In concluding the interview, the reporter expressed heartfelt sympathy for everything I’ve endured. He was being more than polite. I mean, he laid the compassion on with a spatula. Startled, and already thinking ahead to what I had to do next that day, I just thanked him and said goodbye. But now that final note troubles me. I don’t want sympathy! First of all, from the point of view of a new author hoping to promote his book, sympathy
Read more