Tuesday Tidbits - Oh No Not Again!

-
It seems Faith was just getting over her last three-week cold when she started coming down with another one. "Oh no, not again," was all I could think. 

Yesterday I sent her to school even though I knew she was tired because she hadn't slept well all weekend. One of her aides said it had been hard for her to stay on task and stay focused. Last night she was up at 3 a.m. so I knew she wasn't going to do well in school and kept her home. 

She has been sneezing and sounds a little stuffed-up, but I PRAY she has a good sleep tonight and she can kick this cold much faster than her last one.

Last week I took her in to see her pediatrician just to touch base with him since he was available. And of course she was perfectly fine then! He said she may have had RSV which can last three-four weeks. 

Hopefully that is not the case again this time. I told him I was concerned about her throat because she seems to get a sore throat a lot and was wondering if something was going on with her tonsils. He said as long as she is not snoring at night when she sleeps then her tonsils should be fine.

Last week we also celebrated Rob's birthday. I had bought him some miniature chocolate cupcakes and some ice cream. That evening, when we were having cupcakes and ice cream, Faith insisted that Daddy blow out some candles. 

I rummaged through the drawers and found a candle with the number 7, an unused candle left over from Faith's birthday.  So, we stuck that candle in one of the little cupcakes then Faith said we had to sing Happy Birthday. I guess she knows the routine!

I'm glad we had this one candle for Rob to blow out!

Last evening I received a phone call from my cardiologist at Mayo. He was filling in some information for a research study that Mayo was conducting with UCLA on women who have had the Fontan heart surgery and who have also been pregnant. 

The last time this study was done, which was in the 1990s - there were only about 15 women with the Fontan who had gotten pregnant. I'm very interested to know what those numbers are now.

In other news my brother, Todd and I are going to be opening our own Internet store on Zazzle, where we will be making and selling our own bumper stickers, t-shirts, tote bags and everything else you can stick a slogan on! 

Todd has been coming up with some good ideas for bumper stickers - especially for those in the oilfield. That's probably the last thing I need is another project, but I think it will be exciting! I'll be sure to let you all know when it officially opens.

One last exciting event for the week was that Faith lost another tooth!   

Faith's top front tooth was so loose I decided to gently pull it out!

Comments

  1. AnonymousMarch 1, 2011 at 7:51 PM

    Such a pretty toothless smile! Feel better soon, little Princess!

    ReplyDelete
  2. SJ ScottApril 29, 2011 at 8:40 PM

    My daughter has a DORV and is 27...glad you are doing well :) Totally different story for her as she has down syndrome as well. You have my prayers for yourself and your daughter...

    ReplyDelete
    Replies
    1. Cari JeanSeptember 22, 2012 at 12:43 PM

      Thank you so much for your prayers. I apologize this response is so delayed, I am going to check out your blog right now.

      Delete

Post a Comment

Most Popular Posts

My Little Vacay to Nebraska

-
Image
When one thinks vacation, they probably don't think about Nebraska, especially in November! But when I heard that a friend of mine was going be having surgery in Omaha, I began thinking about how great it would be to go down that way, especially since my sister, Tesa has lived in Lincoln for 17 years, and I have never had the chance to visit.  Lo and behold, my dad had also been talking about heading South to Texas in November to hunt wild pigs. My two respite care workers were available to look after Faith starting on a Friday morning through Tuesday evening. All I had to do was book a flight so I could get back home.  Despite all the details falling into place, I was still anxious about it. I haven't flown since Faith was a baby, so I was especially nervous about that part. I prayed about it and believed that everything would be okay.  On the morning of my departure, Faith woke up just in time and her respite care staff was able to get her dressed and take her to her day prog
Read more

Some Thoughts on World Prematurity Day

-
Image
November 17 marks World Prematurity Day . One might wonder why awareness needs to be raised about premature births. Well, I can tell you firsthand that it is a really good thing when more people are aware of the risks and complications, not to mention the emotional toll, of having a baby born too early. Having a baby born prematurely is not something most expectant parents think about until it happens to them. Most moms-to-be who first learn they are pregnant automatically think they have seven or eight months to prepare for one of the biggest days of their life. Expectant parents usually have one response when asked if they are hoping for a boy or a girl - "As long as the baby's healthy." But sadly, sometimes that's not always the case - especially if the baby is born too early. I will never forget the book I was reading shortly after finding out I was pregnant with Faith - "What to Expect When You're Expecting." It was a great resource that o
Read more

Faith Turns 21!

-
Image
 Faith's 21st birthday was on Friday the 25th and it ended up being an all-day celebration! She didn't sleep well the night before, so I was a little concerned she would run out of steam, but she just kept going! It ended up being a beautiful fall day, so I didn't even need to put a jacket on her, which is rare for the end of October.  Faith in her new birthday shirt!  This year, she was able to bring cupcakes to HIT. Last year, due to the dietary restrictions of her peers, she didn't bring any treats. This year, however, she is a new room, where they truly love their snacks! After I dropped her off, I raced around like a maniac getting her ballons, presents, and everything else ready for the surprise party we would be having at the end of the day.  Faith with some of her staff making a cupcake delivery.  When I picked her up from her day program, I informed her that some friends of mine that I worked with wanted to give her a special birthday treat. So, we made our way
Read more

Guest Post: Who Needs Sympathy?

-
Image
Guest Post by Stephen Gallup Last week, a columnist for the local newspaper interviewed me in connection with a memoir I wrote that’s being published this year. It was a comfortable, low-key discussion in which he asked about the basic facts regarding my disabled son Joseph and what I’ve learned that might be of value to other families. It was the sort of dialog that required no special preparation in advance. I just sat down with him and talked about the subject closest to my heart. But looking back on it now, one thing bothers me. In concluding the interview, the reporter expressed heartfelt sympathy for everything I’ve endured. He was being more than polite. I mean, he laid the compassion on with a spatula. Startled, and already thinking ahead to what I had to do next that day, I just thanked him and said goodbye. But now that final note troubles me. I don’t want sympathy! First of all, from the point of view of a new author hoping to promote his book, sympathy
Read more