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Special Needs

Adaptive Toys for Special Needs Children
There are many kinds of adaptive toys available for special needs children, you just have to know where to find them. If you find that these toys are too expensive, you can learn to make adaptive toys for your special needs child.

How Assistive Technology Helps Students with Disabilities
For students with disabilities, assistive technology enables them to keep up with their classmates and to succeed in school. There is a wide variety of assistive technology available to help students with all types of special needs.

The Importance of an Individual Education Plan for Your Special Needs Child
It is vital for parents and guardians of special needs children to understand the importance of having an individual education plan. An IEP ensures your special needs child will get an appropriate education in the public school system.

Adaptive Equipment for Children with Cerebral Palsy
Children with cerebral palsy may need adaptive equipment to get through their day-to-day activities both at school and at home. Some examples include a stander, bath chair and adaptive car seat.

Coping with The News Your Child Has Special Needs
It can be a shock when finding out your child has a disability or special needs. In order to make the best of the situation it is very important to accept the reality of your situation which can be difficult to do.

Please Ask Questions
One of the hardest parts of having a child with cerebral palsy is other people staring at her. If people just asked questions and got to know her, they would find that she is not that different from other children.


The Great American Bike Race
The Great American Bike Race (GABR) is held every year in Bismarck, North Dakota. This huge fundraiser raises money for kids affected by cerebral palsy and related disabilities. This past year there were over 1,200 riders taking part in the event.




Aborting Down Syndrome Babies
Ninety percent of all babies with Down Syndrome are aborted. One reason this statistic is so high is because of the medical community's negative spin on down syndrome.

Family Retreats - A Ministry for Families Affected by Disability
Families who are directly affected by disability are often under stress and feel isolated. Family Retreats is a Christ-centered ministry that offers these families hope.

 What About the Boy - A Father's Pledge to His Disabled Son
What About the Boy is Stephen Gallup's memoir that introduces readers to his son, Joseph who is found as a baby to have a brain injury. Stephen makes a pledge to his disabled son that he will help make him well. Little did Stephen know at the time the energy, effort, strength and endurance it would take to keep that pledge.



Congenital Heart Defect Awareness Week
In the United States, the month of February is referred to as American Heart Month as a way to help promote heart health. But there is also a week in February that is dedicated to babies who are born with something wrong with their hearts and is called Congenital Heart Defect (CHD) Awareness Week.


CHD - The Most Common Birth Defect
Congenital heart defects (CHD) are the most common birth defects. More than 35,000 babies in the United States are born with CHD every year. Learn about the causes, symptoms and treatments for congenital heart defects.

Adults Living with CHD
Adults with congenital heart defects (CHD) face issues that are very unique when it comes to their health care. There are also certain challenges they may face as they get older.  This article contains very useful information on living with CHD as an adult.

Can a Woman with CHD Still Have a Baby? 
Depending on what kind of congenital heart defect (CHD) a woman has, she may or may not be able to safely have a baby. There can be many risks which is why it is important for women to consult with their cardiologist before getting pregnant.










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Getting Used to Our New School Schedule

Today marks Faith's 8th day of school and we are all adjusting to a new schedule. Faith has made huge strides this past summer in sleeping better and having more energy so we decided to have her go to school from 9:00 a.m. to 3:00 p.m. 5 days a week. This is a change as last year she did not go Tuesday and Thursday afternoons due to how tired and worn out she would get. Faith's first day of 4th grade School starts at 8:30 a.m. but we asked if it would be okay for us to get her there at 9:00 instead. This allows us to more time to get her first feeding into her before she even gets to school. Her aides noticed last year that when we brought her to school without any food in her tummy, she was pretty sluggish and tired upon arrival. Sometimes, after getting her to school she wouldn't start getting her feeding until after 9:00 a.m. which meant, that because she gets a feeding every 3 hours, her last feeding of the day didn't end until 10:00 p.m. Another advantage to

A Real Pain in the Arm

Last Wednesday I had my yearly doctor exam and when she said I should get my tetanus shot updated, I didn't think twice about it. The nurse said my arm would be sore for a couple of days, gave me a handout and stuck the needle in my arm. The next day my arm was sore and although I found it a little harder to pick up and carry Faith, I was glad the pain wasn't going to last long. Boy was I wrong! But not only was my arm sore, my whole body was. I felt achy and extremely tired. According to a medical site on the Internet, these were mild side effects of the Tetanus shot. If these were only mild side effects, I would really hate to have them at a moderate or severe level. On Friday, two days after getting the shot I felt so tired that I took a four hour nap after getting Faith off to school. Then on Saturday I took a three hour nap up until 7 o'clock but still felt tired and was able to go back to sleep around 10. On Sunday, finally the fatigue started wearing off and I didn

Goodbye to Our Special Tomato

Today we said goodbye to our Special Tomato adaptive car seat. And special it was. It helped Faith stay safe and secure in our Hyundai driving her back and forth to therapy appointments, shopping excursions and many other activities. It also helped us through our time of not being able to afford an accessible van. Like all adaptive equipment , the special car seat was expensive and although it is the law that a child is secured in a car seat while traveling in a vehicle, neither health insurance nor Medicaid would pay for it. Thankfully, we were able to receive funds from the fundraiser, the Great American Bike Race ( GABR ) which helps families pay for services and equipment that insurance doesn't cover for kids with cerebral palsy and related disabilities.  After doing research on the Internet and talking to Faith's physical and occupational therapists, we decided to go for the Special Tomato adaptive car seat. You would think something with that name would be r