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Showing posts from September, 2024

Cerebral Palsy Awareness Month: Reflecting On Our Journey So Far

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Did you know there are 1 million people in the United States who have cerebral palsy? I guess that means Faith truly is one in a million!  Faith was diagnosed with cerebral palsy when she was six months old. Prior to that, she had been given the diagnosis of Periventricular Leukomalacia  (PVL). During her premature birth, there was a lack of oxygen to her brain, which resulted in damage to the white matter, or inner part of her brain.  I will never forget receiving that news. Faith's Dad and I were told that nobody knew what the long-term effects of PVL would look like for her. All I could do was stare at my tiny daughter lying in her isolette, hooked up to all kinds of tubes and lines, and choose to believe she would be okay.  Faith in the NICU a few days after she was born. After over 70 days in the NICU, we finally took her home to Watford City. There, she would receive regular visits from an Early Intervention team who would assess her and ensure that she met al...
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Our Review of Wheel of Fortune: The New Era

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Last year, when I heard the news that Pat Sajak was retiring from Wheel of Fortune , I knew I better prepare Faith. When season 41 began, I told her, "This is Pat's last season. Next year, there will be a new host."  Faith likes Vanna but loves Pat!  Faith and I have faithfully watched Wheel of Fortune every night since she was about 5 years old. It's how she learned that AEIOU were vowels. The show was also a great way to reinforce the rest of the alphabet. Counting was reinforced, too. When Vanna turned the letters, she counted how many T's, N's, or other letters there were.  She also learned some geography skills with the different trips they gave away. Upon winning a trip to Aruba, she would ask, "Where's that?" Sometimes I honestly didn't know and had to look it up. More often than not, the prize was somewhere in the Caribbean!  I have tried through the years to get her to watch other game shows, but she has only been interested in Wheel...
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Faith's Summer Recap

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One of the reasons I look forward to summer is to finally feel the warmth of the sun. Oftentimes spring in North Dakota is a little on the chilly side, and we still have to don our jackets, and sometimes even our boots, depending on how much snow is on the ground. We were blessed this year with a beautiful summer that began in May. We ended up getting lots of rain, so it remained nice and green the entire season.  This summer kicked off with a visit to auntie Dawn's. She had just bought a new house, and Faith couldn't wait to go visit her. Dawn has a really nice back yard, and it ended up being a nice day to just hang out on her back porch!  Faith and Dawn hanging out!  As June rolled around, we made a trip to the zoo , which we hadn't been to in a couple of years. It was nice to walk around in the sunshine, but we noticed the animals weren't really that active. All Faith really wanted to do anyway is take a train ride.  Instead of looking at the animals, though, she...
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