Did you know there are 1 million people in the United States who have cerebral palsy? I guess that means Faith truly is one in a million! Faith was diagnosed with cerebral palsy when she was six months old. Prior to that, she had been given the diagnosis of Periventricular Leukomalacia (PVL). During her premature birth, there was a lack of oxygen to her brain, which resulted in damage to the white matter, or inner part of her brain. I will never forget receiving that news. Faith's Dad and I were told that nobody knew what the long-term effects of PVL would look like for her. All I could do was stare at my tiny daughter lying in her isolette, hooked up to all kinds of tubes and lines, and choose to believe she would be okay. Faith in the NICU a few days after she was born. After over 70 days in the NICU, we finally took her home to Watford City. There, she would receive regular visits from an Early Intervention team who would assess her and ensure that she met al...
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Faith's First Wheelchair Dance Performance
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Faith loves going to plays, musicals, ballet performances, and other events in which her friends perform. When she was younger, I thought attending these things would be too overwhelming for her as she has a strong startle reflex. Usually, it's loud or sudden noises that trigger her startle response. However, when the noise is constant, or she knows what to expect, she actually does very well. That's why when I found out that Dreams in Motion was doing wheelchair dance, I figured she would want to do it. When I asked, she enthusiastically said, "YES!"
She was so excited to go to her first practice. She told everyone she saw that she was going to be in a dance performance! During practice, we found out the theme was Encanto (which we have never seen). They were going to be dancing to a medley of songs from the movie. There were about a dozen participants, some with manual wheelchairs and others with powerchairs.
During practice, each of them was paired with a volunteer who helped them dance. Faith even had a little solo part in which she carried a coffee cup to the dance instructor. When her "coach" said, "And that's why coffee's for grownups!" Faith handed the cup to her.
Faith was all smiles during her first dance practice!
The following week, Faith had dress rehearsals in which they received their costumes. Each participant and volunteer wore a little tiny sombrero along with a colorful poncho. They also practiced with the props that were a part of the performance.
It was great seeing everyone having so much fun together. Faith knew a few of the participants from past Dreams and Motion events (such as wheelchair soccer and track and field). She also knew some of them from where she goes to therapy and her day program. A few other moms remarked how comical she was. She certainly does love to make people laugh!
Faith laughing at Coach Lacey.
Faith with her super fun partner, Liz!
Practicing her coffee cup part.
The actual performance was held at Shiloh Christian School and hosted by Just for Kix, which is a dance company in Bismarck. There were 3 performances, and the wheelchair dance group would be participating in 2 of them. The first performance was at 10:00, which meant we needed to be there at 9:30. Thankfully, the school was less than 5 minutes away from where we lived.
We were told that the show would be standing room only, so I was expecting mass chaos upon arrival. Even though we arrived 30 minutes before the show started, the parking lot was already full. I wasn't sure how I was going to get Faith unloaded on my own and then park. (Of course, all the handicap spots were taken!)
I was thinking I could text my parents, who I knew were probably already inside, and ask for their help. Then, I looked and saw a good friend walking through the parking lot with her granddaughter. I honked and asked if she could take Faith inside and wait with her while I parked. Talk about God's perfect timing!
Inside, we found our group and just hung out until it was their turn. There were about 9 or 10 teams before them. Finally, I let Faith's partner take over and went to find a spot to record their performance. They all did so great! Even when one of the props kept falling over, they just rolled with it and didn't let it phase them. Faith wasn't nervous or scared or anything - I was so proud of her and everyone else!
Here they come! Faith didn't even seem phased by the packed gym.
When they finished, I heard a thunderous round of applause and then everyone began to stand! My eyes instantly filled with tears. I really felt like these wheelchair dancers had inspired everyone in the audience, including the other dancers. Afterward, I hurried to the lobby, found Faith and told her that she did it and I was so proud of her! All of the performers were super excited and some of the moms had tears in their eyes, too.
Since we had a few hours before the next performance, I debated on going back home for a bit. I decided against it though as I didn't want to have to deal with parking again. My parents came into the lobby and told Faith what a great job she and everyone else had done. I told them I wasn't prepared for it to be such an emotional experience. Mom said there were even people in the stands crying.
So glad Grandpa and Grandma could make it to the performance!
Me and my dancer!
During the break, Faith ate a bag of animal crackers, and I grabbed a hot dog. We had a nice time just visiting with other parents and their kids. At one point, I took Faith into the bathroom to give her some water through her g-tube. There were some other dancers in there and Faith tried to strike up a conversation with them. She really isn't afraid to talk to anyone!
Out in the lobby, she continued to compliment the other dancers on their hair and costumes. We were sitting right next to the table where people came in and paid and she tried to talk to almost everyone there, too. I told her she really didn't have to talk to everyone! To which she just responded, "Yes I do!" (She gets it from Grandpa!)
Finally, it was time for performance number 2, and they did just as well with another standing ovation. Afterward, the group took some pictures, handed out certificates, and then Faith was ready to head home. It had been an exciting day, and she was ready to just relax! All in all, it was a great experience, and she already can't wait to do it again next year!
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It was so much fun ! Faith did great ❤️
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