Did you know there are 1 million people in the United States who have cerebral palsy? I guess that means Faith truly is one in a million! Faith was diagnosed with cerebral palsy when she was six months old. Prior to that, she had been given the diagnosis of Periventricular Leukomalacia (PVL). During her premature birth, there was a lack of oxygen to her brain, which resulted in damage to the white matter, or inner part of her brain. I will never forget receiving that news. Faith's Dad and I were told that nobody knew what the long-term effects of PVL would look like for her. All I could do was stare at my tiny daughter lying in her isolette, hooked up to all kinds of tubes and lines, and choose to believe she would be okay. Faith in the NICU a few days after she was born. After over 70 days in the NICU, we finally took her home to Watford City. There, she would receive regular visits from an Early Intervention team who would assess her and ensure that she met al...
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Faith the Graduate
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I can't believe I am the mother of a graduate! It seems I have waited a long time for this. At the same time, however, it has come very quickly.
I still very vividly remember the days of walking her to school from our apartment building to Centennial Elementary. She had some wonderful teachers, but when she was in 4th grade, we decided to homeschool her.
There were definitely a lot of positive things about homeschooling. One was that she didn't tire so easily so she could focus more. The other is that she didn't catch everyone's germs, which meant she was sick less often.
Another benefit of homeschooling was that I could give her one-on-one attention. Faith's biggest goal was to learn how to read. It took a long time, and although she can only read simple words and very simple sentences, she exceeded expectations
One major drawback of homeschooling is that she missed being around other kids. It didn't help that she is an only child. When I found out about Inspire Collective, I thought it would be perfect for Faith! Unfortunately, at the time it started Faith had some medical stuff that we needed to resolve. But finally in October 2017, Faith was doing better and we decided to give it a go.
There were two girls, who were sisters, that she automatically clicked with. Those two girls remain her best friends. She made other really good friends as well. Many of these girls have invited Faith to their birthday parties and they have come to hers. I love that her disability was never a barrier to making new friends in this group!
Besides making great friends, she studied history, science, STEM, music, and arts, she has participated in Christmas programs, field trips, and other special courses. We are so thankful to Nicole Elliott, for founding Inspire and also to
Mandi Wilhelm for taking it over. All of the teachers made learning so much fun. Even I learned a lot from them over the
years!
Because Inspire played such a huge role in Faith's homeschooling education, it seemed appropriate to present her diploma there. I must say, that as I gave the presentation, I was overcome with emotion. I felt so grateful that God had provided everything throughout the years to help us in this endeavor.
I was so thankful for my "Inspire family" and their love and support. They truly went out of their way to make the day very special day for Faith. Some of her classmates showered her with cards, special gifts, and even the perfect balloon! I was also thankful my parents could come to the event, even though we all made each other cry! As we rolled out the door when it was all over, she yelled, "Yay!! I did it, I graduated!"
Since Faith is already 18 and has graduated, the next step will be attending a day services program for adults with disabilities. She is excited about this opportunity. However, she is also feeling a bit anxious. She knows I am going to have to leave her there.
Since she was homeschooled, this is going to be new for her. I have never really just dropped her off and left her somewhere. She has had respite care look after her while I'm gone, but that is in here home, where she feels safe and secure. Even when we go to therapy twice a week, I am there with her.
It will definitely be different for both of us. I know, though, that this is the right thing to do and that she will probably end up loving it! I'll most likely be the one having a hard time with it!
I am still going to do a graduation open house for her, but it won't be until spring. Maybe by then, we will be done with the cold, snow, and sickness that seems to be hitting everyone we know. For now, I'm going to process the reality that my daughter is all done with school and that she is taking the next big step in her journey!
Keep scrolling to see pictures each year of school!
Guest Post by Stephen Gallup Last week, a columnist for the local newspaper interviewed me in connection with a memoir I wrote that’s being published this year. It was a comfortable, low-key discussion in which he asked about the basic facts regarding my disabled son Joseph and what I’ve learned that might be of value to other families. It was the sort of dialog that required no special preparation in advance. I just sat down with him and talked about the subject closest to my heart. But looking back on it now, one thing bothers me. In concluding the interview, the reporter expressed heartfelt sympathy for everything I’ve endured. He was being more than polite. I mean, he laid the compassion on with a spatula. Startled, and already thinking ahead to what I had to do next that day, I just thanked him and said goodbye. But now that final note troubles me. I don’t want sympathy! First of all, from the point of view of a new author hoping to promote his book, sympathy...
Did you know there are 1 million people in the United States who have cerebral palsy? I guess that means Faith truly is one in a million! Faith was diagnosed with cerebral palsy when she was six months old. Prior to that, she had been given the diagnosis of Periventricular Leukomalacia (PVL). During her premature birth, there was a lack of oxygen to her brain, which resulted in damage to the white matter, or inner part of her brain. I will never forget receiving that news. Faith's Dad and I were told that nobody knew what the long-term effects of PVL would look like for her. All I could do was stare at my tiny daughter lying in her isolette, hooked up to all kinds of tubes and lines, and choose to believe she would be okay. Faith in the NICU a few days after she was born. After over 70 days in the NICU, we finally took her home to Watford City. There, she would receive regular visits from an Early Intervention team who would assess her and ensure that she met al...
Last year, when I heard the news that Pat Sajak was retiring from Wheel of Fortune , I knew I better prepare Faith. When season 41 began, I told her, "This is Pat's last season. Next year, there will be a new host." Faith likes Vanna but loves Pat! Faith and I have faithfully watched Wheel of Fortune every night since she was about 5 years old. It's how she learned that AEIOU were vowels. The show was also a great way to reinforce the rest of the alphabet. Counting was reinforced, too. When Vanna turned the letters, she counted how many T's, N's, or other letters there were. She also learned some geography skills with the different trips they gave away. Upon winning a trip to Aruba, she would ask, "Where's that?" Sometimes I honestly didn't know and had to look it up. More often than not, the prize was somewhere in the Caribbean! I have tried through the years to get her to watch other game shows, but she has only been interested in Wheel...
February started out as it typically does: very cold! This year, my parents and sister braved the weather to have a small get together for my birthday. Faith thought I needed another party like I had last year, but I told her 51 just wasn't as exciting! She also asked if her Auntie Tesa was going to fly up again. Faith really does love a good party! Accurate! Dawn, Faith, and Me Dad practicing holding his arm for after shoulder surgery The next day, my parents took me to IHOP , which had recently opened here in Bismarck, but I hadn't had a chance to go yet. It did not disappoint. My pancakes, eggs, hashbrowns and coffee were all perfect! I was glad to have gotten this meal in with my parents as two days later, my dad would be going through shoulder replacement surgery. We were all expecting him to be in and out on the same day, which is exactly what happened a couple of years ago when he had knee replacement surgery. I, along with my siblings, was shocked t...
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