Posts

Cerebral Palsy Awareness Month: Reflecting On Our Journey So Far

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Did you know there are 1 million people in the United States who have cerebral palsy? I guess that means Faith truly is one in a million!  Faith was diagnosed with cerebral palsy when she was six months old. Prior to that, she had been given the diagnosis of Periventricular Leukomalacia  (PVL). During her premature birth, there was a lack of oxygen to her brain, which resulted in damage to the white matter, or inner part of her brain.  I will never forget receiving that news. Faith's Dad and I were told that nobody knew what the long-term effects of PVL would look like for her. All I could do was stare at my tiny daughter lying in her isolette, hooked up to all kinds of tubes and lines, and choose to believe she would be okay.  Faith in the NICU a few days after she was born. After over 70 days in the NICU, we finally took her home to Watford City. There, she would receive regular visits from an Early Intervention team who would assess her and ensure that she met al...

An Unforgettable February!

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February started out as it typically does: very cold! This year, my parents and sister braved the weather to have a small get together for my birthday. Faith thought I needed another party like I had last year, but I told her 51 just wasn't as exciting! She also asked if her Auntie Tesa was going to fly up again.  Faith really does love a good party!  Accurate!  Dawn, Faith, and Me Dad practicing holding his arm for after shoulder surgery The next day, my parents took me to IHOP , which had recently opened here in Bismarck, but I hadn't had a chance to go yet. It did not disappoint. My pancakes, eggs, hashbrowns and coffee were all perfect!  I was glad to have gotten this meal in with my parents as two days later, my dad would be going through shoulder replacement surgery. We were all expecting him to be in and out on the same day, which is exactly what happened a couple of years ago when he had knee replacement surgery.  I, along with my siblings, was shocked t...

My Top Ten Blog Posts of 2024

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Remember David Letterman's Top 10 lists? That was back in the day when late night TV was actually funny! This was also when music was really great, and I faithfully listened to the Top 40 countdown every Saturday. And around New Years, the DJ would play the top songs of the year!  I guess thinking about these things inspired me to come up with my own list. As a final nod to 2024, I looked back at all the posts I have ever written and have listed the ones that had the most views this past year. I found it interesting that posts I have written long ago were still being read in 2024!   10. Goodbye to Our Special Tomato Adaptive Car Seat  Faith at the age of 9 in her adaptive car seat. This post from 2012 describes how Faith had finally outgrown the adaptive car seat she needed when we did not have an accessible van. The car seat fit in the backseat of my Hyundai Elantra. The adaptive car seat was great, but I don't miss the days of picking her up out of her chair and pu...

We Made It Through December

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Every December, I look for Christmas shows to record and then watch them after Faith has gone to bed. I love curling up with a fuzzy blanket and a cup of tea with the Christmas tree lights on, watching a holiday program. Usually, there is Christmas music involved!  This year, one of the shows I watched was Little Big Town's Christmas at the Opry . It was really good, and one of the most memorable performances was the country band's rendition of the Merle Haggard song, " If We Make It Through December ."  When I heard them sing that song, I resonated with the title. Faith and I had both come down with COVID. Before that, I was just getting over a bout of the stomach flu. (Thank goodness Faith didn't catch that!) In between sicknesses, Faith and I managed to make it to The Nutcracker, but that's about the only thing we did in the days leading up to Christmas.  We made it to our 7th annual Nutcracker performance!  One thing I missed that I was very disappointed a...

My Little Vacay to Nebraska

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When one thinks vacation, they probably don't think about Nebraska, especially in November! But when I heard that a friend of mine was going be having surgery in Omaha, I began thinking about how great it would be to go down that way. That, and the fact that my sister, Tesa has lived in Lincoln for 17 years, and I have never had the chance to visit made me seriously consider the possibility.  Lo and behold, my dad had also been talking about heading South to Texas in November to hunt wild pigs. My two respite care workers were available to look after Faith starting on a Friday morning through Tuesday evening. All I had to do was book a flight so I could get back home.  Despite all the details falling into place, I was still anxious about it. I haven't flown since Faith was a baby, so I was especially nervous about that part. I prayed about it and believed that everything would be okay.  On the morning of my departure, Faith woke up just in time and her respite care staff ...